Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
Sounds like you've been through a lot and now have at least one answer: endo.
Glad you're getting treated, and welcome.
I'm really sorry to hear about the hysterectomy recommendation - I would highly suggest getting a second opinion, preferably someone who removes a lot of endo/fibroids laparoscopically. When I woke up from my lap my surgeon said I would need a hysterectomy soon for both my endo & fibroid and I am only 26. I got two more opinions and neither of the other two recommended hysterectomy! The doctor I am seeing now is very confident he can remove it without a hysterectomy. Obviously this isn't always the case and it's true yours could require it...but I say it's worth getting another opinion or two to set your mind at ease about whether you really have to do it or not. A site I've seen recommended a lot for people contemplating hysterectomy is http://www.hystersisters.com as well as the hysterectomy support forum here.
Sorry to hear you are going through all this :( Hope you're feeling better soon and welcome to the group!
The doctor I am seeing now is an endo specialist but deals with fibroids a lot too due to his expertise in minimally invasive surgery. Even so there definitely are cases where the only option is hysterectomy, just be sure you're 100% informed and ok with the decision first as a lot of women regret it and that is the last thing you want! When my first surgeon (who did my lap) said hysterectomy I went to hystersisters which is what led me to my second and third opinions. Even if they had both said hysterectomy it would have made me more comfortable with that choice, knowing I really needed it.