Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
I am sorry you are going through this. It really stinks that your Dr. won't listen to you, but really that isn't uncommon with this disease. :-(
I hope you don't mind but I looked at your profile and noticed you have Georgia listed as you home state. Well, I don't know how far you live from Atlanta Georgia, but there is a endometriosis expert in that area, the Dr's there are not just "specialist" they are some of the leading Dr's in the field of endometriosis treatment (finding an actual expert is very hard, so it is pretty awesome you have one in your state). It is called the center for endometriosis care (CEC). I have never been there myself, but have looked into them a lot and have heard a lot of positive feed back about them.
I do believe they offer to do a free consult as well. Also there website has a lot of helpful information about the disease if you are interested in reading up on it. Here is a link to their site, good luck!
http://www.centerforendometriosiscare.com/
In the mean time, we are here for you!
Please dont put it off, I wish I had know what was happening to me before I did, could have saved myself time and pain. And Endo effects other systems/things in your body (part of the reason its a little hard to diagnosis) so the quicker you get to the casue the quicker you may find relief and lessen the potential damage/recovery time.
I'm glad you found us here, hope we can help, you're certainly not alone.
http://www.mayoclinic.com/health/endometriosis/DS00289
I understand your frustration, but I want to point out the obvious...which is very much in your favor. Humor me...
1.) Your age and potential for "early" diagnosis @ 18
2.) Opinions vary (mine included) but for better or worse, you've been on DP for a year (hopefully) suppressing new growth
3.) Your geographical location in GA...access to a renowned center for diagnosis and treatment of this disease. I'm thinking the cost can be exorbitant, but perhaps your insurance will cover. PLEASE check it out.
4.) You have access to digital information vs. Campbell Soup cans on strings that I used for a telephone pre-1993=) Sadly, most don't get the "joke". While the access to a wealth of information is a Godsend, it can be a curse if you "buy into" all of the charlatans who promise a quick fix or cure. There's NO CURE, so beware.
5.) There is a great potential for treating/managing this disease if you stay strong, push ahead and fight the good fight. Trust me...Denial or Delusion will feed this BEAST.
I must say to you that I am so sorry for the loss of your mother. DO THIS FOR HER if you can't muster the strength to do it for yourself. Remember...there are many ladies here who understand more than you have yet to imagine. You are NOT crazy. You need a GOOD doctor who is competent in this field to help you. I don't paint pretty pictures where they don't exist...BE YOUR OWN ADVOCATE and lean on us for emotional support. We care=)
~~Pup
http://www.endofound.org/resource-materials
I'm sorry you're going through all of this. I hope you're able to find a doctor that finally listens to you. Keep pushing! There's got to be a doctor out there that's a good match for you.
I am also sorry for the loss of your mother. I lost mine 7 years ago when I was 24, so I understand it can be scary and overwhelming to go through this with out a mother (yes, at 31 I still wish I had mine to hold my hand sometimes). But like the other ladies mentioned, you really shouldn't delay. I wish I had been properly diagnoised when I was younger.
Good luck, I hope you find a dr that is willing to listen to you.