Sra,

Always go with someone you are comfortable with, if you feel more comfortable with this new doctor, definitely stick with him, and send him your other records if you haven't yet. If your old doctor doesn't seem like he is listening (which it doesn't sound like he is) leave. Your doctor has to be someone you trust...Most of us here have gone through over 4 or 5 doctors just to find someone who listens and that we trust.

I think that you should look into another laparoscopy before the hysterectomy, and maybe look into finding a specialist.

--Tye

I just found out last week that my uterus is tilted. The ultrasound technician told me. She said, you know that it's tilted. NO. the doctors never told me! Anyway, I would do a lap. A hysterectomy is a big deal. hope you find a great doctor & pain free days. :) kat

Thanks for your advice. I decided to has a laparoscopy surgery with the new doctor :) the surgery will be Sept 9.

Kat do you feel any pain associate with having the uterus tilted back?
My new dr told me he will sew my uterus to fix the problem. I cannot wait to have my surgery. I really hope and pray I will be better after it.


Thanks ladies :)

Hi Sra,
Before you decide to have a hysteractemy i would suggest you try the Lupron it is not that bad as long as you have a hormone adback. I use Norethendrone10mg and it works very well for me. My doc also put me on a med called Letrozole it takes all the female hormone out of your body and puts your body in a medically enduced hysteractemy state. I have been on it for about 2 months and had an exam on tue and my doc said that this was the best exam he has ever done on me which means the meds are working. I know it is not fun but it is worth a try to see what your doc says before you have the major surgery.

Stay strong,
lupron girl

Sradolenkamp - It is a hard decision. But, you have to think about what you want and look at many options. No one says you have to do what this doctor says, you can always get a second opinion. Hopefully, someone else can offer more options for you.

If you look at other forums like hystersisters or talk to others, some still have endo symptoms. Hysterectomy is not a total guarantee that the pain will go away. I have endo on other sites such as top of my bladder and suspected bowel involvement, so those organs can't be removed.

If you don't want a hysterectomy, then I wouldn't consider it. If you are going with a laparascopy, you might as well go to someone who can treat your endo as well the retroflexed uterus. You may even need to have involvement of the pudendal nerve.

You may have the laparascopy and then they will tell you afterwards to go on Lupron. And, then you may ask how long will you need to be on Lupron. That's the question that needs to be asked and that's the answer you need.

I'm very partial against Lupron and the add-back therapy. So, sorry I can't give you positive feedback on it. For me, the risks far outweigh the benefits. I wasn't 'cured' by going on 5 months and then 3 months of Lupron, my symptoms came back those two times I got off Lupron. It seems that everyone is different. It was such a nightmare that I don't look forward to going through menopause.

Good Luck in making the best decision for you! I hope it works out alright!

Thanks girls. I am having my laporoscopy Sept 2. I hope everything goes well ;)

I'm glad you are having the lap!!

It sounds like from your original post that you were diagnosed with Endo in Sept of 10 and went on Depro P. Did you have a lap done when you were diagnosed? Endo cannot be detected using any diagnostic methods. They can only confirm you have it during a lap surgery. I'm seeing more and more doc's treating people for endo without actually diagnosing it through the lap.

I'm confused on this one... for sure. Either way, having a lap done now will give you up to date answers and you will be better prepared for whatever next step you will need to take when the time comes. A hysterectomy just one year after a diagnoses is very extreme. Glad you aren't saying yes to that quite yet.

Let us know how your lap goes.

Love and Light~ Nat

Hi Nat:

I had a laparoscopy to diagnose Endo on Sept 2010. I have been on Depro for almost a year. I think the hysterectome is the last resource I will consider. My original gyn keeps on offering the hysterectomy for this reason I looked for a second opinion ;)

Thanks for all your support.

Have the Laparoscopy to see what everything looks like in there and go from there. Each and every doctor has different talents. My endo is so bad that the doctor who is known for complicated pelvic surgeries refused to touch me because I intimitated him; I had to go to Atlanta, GA and the doc their said I was a piece of cake! lol Craziness!

I would take steps that are least invasive first and as you progress take more extreme measures. If the Depo Provera isn't working, perhaps try out the Lupron or if you're not comfortable with that try another treatment. If that doesn't work then do the laparoscopy, and maybe after your surgery try the Depo again or Lupron. (Combine treatments) If the endo comes back again then start considering the hysterectomy, but be sure you understand the full consequences and make sure that you've covered everything with your Doc.

Also if you're having other types of pain, make sure to get that checked out by your Doc to make sure that the endometriosis hasn't spread to other organs.

Good luck and stay strong. Hope the comment helps :)

Hi you sound like me before I had my hysterectomy, not saying you should go for it or anything thats up to you but for me it was a lifesaver. good luck

Go to endovan.com. It is the only thing that has worked for me. Have recommended it to many and has worked for them all. Please give it a try. Good luck,
Deanna

I've decided to get the hysterectomy for my adeno. I know that it won't completely get rid of the endo but as long as it helps something and it's really the adeno that's been the biggest concern. As for the tilted uterus...I was told that I had one about 15 years ago. I had never heard of it before and it sounded so exotic. Now, though, it seems like every woman I know has one. So I think it's a lot more common than not. Mine is almost totally flipped and I've been pregnant 4 times. (Three live births and two living children.) It straightens itself out during pregnancy and then flips back when I'm not pregnant. Never felt it, never had any pain from it, never caused any problems. Just weird...