Encephalitis Support Group

Encephalitis is an acute inflammation of the brain, commonly caused by a viral infection. Sometimes, encephalitis can result from a bacterial infection, such as bacterial meningitis, or it may be a complication of other infectious diseases like rabies (viral) or syphilis (bacterial). Encephalities sufferers experience fever, headache, vomiting, confusion, drowsiness and photophobia.

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  • Hi friends! Nowadays many of people are suffering from Encephalitis. Basically, it is a high-risk condition that causes brain inflammation and nowadays it is spreading widely. Sometimes it may have referred as Japanese Encephalitis and it may spread through mosquitoes and other insects. So, it is time to be aware of it and ensure that the surroundings are well maintained and citizens are well...
  • deleted_user

    Encephalitis in 1 year old

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    Hi,My one year old has been diagnosed with encephalitis and is in the hospital. The doctors have conducted MRI, EEG and lumbar puncture to confirm that it is encephalitis. She is in a semi-coma state and is stable right now, however and worried about time to recover, potential lasting effects etc.Is there anyone who has known of an infant going through and coming out of Encephalitis? Would love...
  • Blessedtobehere2016

    Meningoencephilitis

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    Has anyone else out there had this illness.  I was sick last year 2016 with it and almost died.  I was on life support 6 days and my kidneys failed and much more.  I don't remember my time in the hospital.  I have had a headache for 4 weeks!  Everyday!  I'm wondering if this could be from the illness.  Meningoencephilitis is having meningitis and encephilitis at the same time.  I am 66...
  • deleted_user

    Needing a friend that has suffered from encephalit

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    I am writing this for my mom. On Jan 11 she had a seizure and found out 2 days later it was encephalitis. She was in the hospital 22 days and has been home and doing quite well for almost dying. She has problems finding =her words at times and is very weak and shakey. Nothing tastes good to her. She is very down. Her family can't understand what she is going through. If someone is out there that...
  • deleted_user

    Encephalitis and the after effects

    I'm 35 and had viral meningitis and encephalitis when I was 18 years old. I was in a coma for a couple of weeks, had to learn how to walk again and control motor skills. The doctors never found out what virus caused my illness, in fact my blood was sent to the CDC. The Encephalitis attacked my brain stem, and my hormones were out of control as well....I lactated, had my period for two months,...
  • deleted_user

    Does anyone else have the same after-effect

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    I had viral meningitis and encephalitis just over 2 years ago, at 21, i soon after got diagnosed with neuralgia (in case this is the problem). My encephalitis started off with the severe joint pains, but I am writing to see if anyone else has the problem that after their illness they get pains that feels like its in their bones/joints? Mine isn't a constant pain, more of a dull ache that is very...
  • I've been in for 2 weeks. On acyclovir, infection appeared to be clearing but I can't walk. I have no idea about rehab. It's terrifying me though. I'd never even heard of encephalitis before, I just started throwing up all the time and getting really bad headaches that nothing could touch. From what I read it would seem I've been pretty lucky in the grant scheme of things. May have been better if...
  • deleted_user

    Encephalitis Global Support Group

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    Hi Everyone! I know that encephalitis is a very rare disease and I had hse in December of 1995. Encephalitis Global, Inc. is the official website for survivors and caregivers and our online support group has over 1900 members worldwide. I would love to see you go there and join the Inspire support group. www.encephalitisglobal.org. We all support each other with information (and shoulders to...
  • deleted_user

    6 m/o with HSV 2 Encephalitis

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    At the age of 2 weeks old my daughter got HSV 2 Encephalitis, caused major brain damage and seizures, we almost lost her, she is now 6 months old and has so many medical problems because of it. I don't know how to handle all this, I fear for her future. She is only almost 11lbs at almost 6m old, she barely eats, she can't sit up, hold her head up, doesn't baby talk, has a hard time controlling...
  • deleted_user

    Encephalitis Cures

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    My 13 year old son, diagnosed with viral encephalitis, had swelling on the brain stem that caused nausea and vomiting to the point that he became hospitalized. High doses of Prednizone were given to him to reduce the swelling to a point that he could at least be at home and sit in a chair. His condition only grew worse until I discovered that Dr. Klenner used high doses (8000 to 10000 mg) of...
  • I'm hoping for any insight anyone can give me. My grandma is currently coming out of a diabetic coma from encephalitis. She was found Wed morning unconscious at home. She was taken by ambulance to the local hospital where she had a seizure. She was life flighted in the helicopter to a trauma center where she has been ever since. She's been in a coma but she's slowly coming out of it. Her blood...
  • deleted_user

    HSV 2 Encephalitis

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    At the age of 2 weeks old my daughter got HSV 2 Encephalitis, caused major brain damage and seizures, we almost lost her, she is now 6 months old and has so many medical problems because of it. I don't know how to handle all this, I fear for her future. She is only almost 11lbs at almost 6m old, she barely eats, she can't sit up, hold her head up, doesn't baby talk, has a hard time controlling...
  • deleted_user

    grief support

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    I lost my 15 y/o daughter 5month ago. She was sent to the hospital with viral meningitis, two days later the CT scan reviled sinusitis, next day she was on life support and doctors said it is probably encephalitis. Next day my baby was gone. Life stoped
  • deleted_user

    Hello

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    I wanted to introduce myself. I'm here to learn and find out info about encephalitis and its after effects.I had it last month and I couldn't eat, drink, or do anything. I lost 13lbs in a week and my whole life went into the trash can. Right now I'm trying to get back to where I need to be, but I still can't work because I keep getting headaches and nausea while working so I end up in the ER.My...
  • deleted_user

    Lingering symptoms

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    I contracted encephalitis 3+ years ago. The first several months were extremely difficult, with body temperature changes in my hands/feet, extreme fatigue, headaches, loss of taste, slurred speech, etc. The most severe symptoms lasted only hours, such as inability to walk, talk, etc. But now, this much later, I still have a tingling sensation across my face. I leave out essential words when I...