Ehlers-Danlos Syndrome Support Group
Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary from mild to life-threatening. Common symptoms are unstable, flexible joints with a tendency to dislocate and subluxate, and elastic, fragile, soft skin that easily forms welts and scars.
Does anyone else have muscles that completely shut down when you are tired after exertion?
After physical therapy or if I try to exercise my legs get so fatigued that my muscles practically shut down and my legs wont hold me. They just collapse completely. At times I'm not even able to fire my quads. My arms will do the same thing. If I fall and try to pull myself up they are just to fatigued and weak.
Is this because of fatigue, my autonomic stuff, Bp drop, or could it be from my vertebrae that slide back and forth?
I was just wondering if anyone else experiences the same thing.
After physical therapy or if I try to exercise my legs get so fatigued that my muscles practically shut down and my legs wont hold me. They just collapse completely. At times I'm not even able to fire my quads. My arms will do the same thing. If I fall and try to pull myself up they are just to fatigued and weak.
Is this because of fatigue, my autonomic stuff, Bp drop, or could it be from my vertebrae that slide back and forth?
I was just wondering if anyone else experiences the same thing.
My legs give out throughout the day. I also have some herniated discs in my back so I'm sure that plays a part in it. But my legs were giving out way before I hurt my back. And yes after PT it would happen more often but now my knees have gotten so bad that I never know when it's going to happen....it just does. Using my cane has definitely helped me from falling when my legs do give out though. I also experience the extreme fatigue in my major muscle areas even without any exertion. The only thing I can think of is that you keep exercising and build up muscle as best you can.
Good luck!!