Dizziness & Vertigo Support Group
Dizziness is the sensation of instability. Vertigo refers to dizziness with a sensation of motion. Vertigo is more likely than other types of dizziness to be associated with nausea, vomiting, or double vision, to occur even when lying down, and to feel better with the eyes closed. If you are a frequent sufferer of dizziness or vertigo, join the group and find support.
Hi
I am really fed up.
First had vertigo it in 2008 when I went diving off a boat - very sea sick and then felt like I was on a boat after that, took prochlorperazine and it went almost immediately – think I had it for about 2 weeks.
Next had it in February 2016 in New York – had a cold and then started to feel the motion – horrendous when I got back and got another cold and it got worse. Had moments where it went and then came back, betahistine nor prochlorperazine seemed to help. Eventually went after about 5-6 weeks fading gradually.
Had nothing until middle of September 2016 apart from I remember a few times at work when I felt dizzy in the afternoons – felt a bit like a stressed overwhelmed feeling but didn’t last outside work and was only in the afternoons. I remember thinking that I would leave tasks in work to do the following morning when I wasn’t dizzy and fuzzy headed.
Then I was sat at my computer at work when I started to feel weird, no cold, was stressed thinking about stuff. My right arm felt detached (I do remember having this feeling years ago in Cottons at my desk). Didn’t immediately get the ‘labyrinthitis’ feeling, was more like a woozy feeling like my eyes were catching up with my brain and head as I moved it. Then progressed to the familiar motion feeling, like being on a boat. Went through various different feelings of wooziness, terrible anxiety, closed throat, panicky very ill feeling, tearful, desperate. Tried accupunture, hopi ears candles, massage, physio, indian head massage, chiropractor. It’s moved from my head to body, motion with my pulse, flickering eyes and pressure head ache. Prochlorperazine did seem to help with flickery eyes and headache.
Had eye test, MRI and ECG and all clear.
Six months from the point it has come back, I have had the motion non stop and it does not stop. Nothing helps and it makes me very anxious and low, don’t want to give into it and let it win, – feel like I’m on the edge of a cliff, also terrible going over bridges or on heights. Seems to get worse when I think of something stressful.
I have been back to ENT and have been referred for vestibular rehabilitation therapy which I paid privately for yesterday. She gave me one exercise to do and said that she can't make any promises.
I am at the end of my tether.
Not much has changed but feeling hoeful
I had a sinus infection about 6 weeks ago, took antibiotics, sinus healed up as far as I knew. But my ears were still clogged. I thought nothing of it, that they would eventually clear themselves.
About 3 weeks ago, I started having these symptoms like all of you. Sudden wave of random dizziness and nausea, I could slightly feel it coming on. Then once it hits, it hits. Feel dizzy, arms feel heavy, have to breathe deep to keep the anxiety at bay because I freak out every time.
Finally 3 days ago at about midnight I thought "this HAS to be something horrible", and went to urgent care. Dr. confirmed that there's a lot of fluid in both ears and that's what's causing it.
She told me to take benydryl at night, and sudefed during the day, to "dry" up the fluid, and to take Bonine to help with the vertigo.
First 24 hours it worked wonders, I thought it was gone.
So the next day, I didn't take the bonine and wasn't "diligent" about taking the sudefed.
It came right back with a vengence.
Again today, forgot to take the next dose of sudefed AND bonine, and had really bad spells.
Does anyone know HOW to get fluid out of the ears?
I thought for sure I was dying, and she said my vitals were perfect, it's definitely all that fluid.
I never knew something as simple as leftover fluid in your ears could literally change your life so much!
Feel so bad for everyone here! :-(
Finally after 4 years battling vertigo, I can say that I am vertigo free. Feel like I have my life back. I am able to enjoy my daily activities. And when I feel an episode coming back, I can stabilize within minutes and continue with my daily routine. I was very determined to overcome my imbalance, specially after the doctors told me that there was nothing more they could do for me. My reason for joining this group is to share my story and hopefully help some of the sufferers in this group.
I have done all the procedures: epley, brandt doroff, I even purchased a DizzyFix cap. I did the gaze stabilization exercises, all these procedures helped, but not 100%. Vertigo is different for everybody, what worked for me, may not work for everybody. It is always good to visit various doctors, one of them will help you, or as in my case their combined assessment.