disabled lesbians Community Group
thsi is a place where lesbians with any sort of disability can discuss the unique problems they experience as members of 2 minority groups
thsi is a place where lesbians with any sort of disability can discuss the unique problems they experience as members of 2 minority groups
Hello and welcome to Happy, Coltaine, Spike and Dora.
I'm almost 43. I came out when I was 27 yo but I knew I was a dyke when I was 2 1/2 yo. It's a very funny story but I'll save it for later.
My disability is complicated: Recovering from lung damage due to air pollution, at one time (Summer 1998) I had only 3 months to live. I got a second chance due to Acupuncture, Chinese and Western Herbs and a miracle. I have debilitating asthma, allergies and chemical sensitivities. Things that are bad for other people to breathe can kill me.
I have a service dog that smells when I need meds or when I'm in danger from air quality issues. We've been a team over a decade. Now she's 12 yo and getting older is semi-retired. I'm not sure if I'll ever get another service dog as her instincts and behaviors were unique and recognized by a trainer who sharpened her communication signals around what she was already doing. As far as I know, there are no others like her. This means my life expectancy may suddenly be at question when she passes in a few years.
While I was improving, I reversed years of infertility and had a daughter who is now 4 yo. She is amazing and the reason I keep looking for a cure or ways to improve my health. She is completely healthy. I am home-schooling/un-schooling her until she is old enough for special schools. The people who've interviewed her for preschool tell me that she's profoundly gifted and that she'll probably finish high school level material before she's 12. She speaks several languages, has been reading since she was 20 months old and loves math, music and dancing.
When I was pregnant with my daughter, I planned a home birth. In the end I had an emergency C-section. Three days after she was born I had complications that almost killed me including out-of-control high blood pressure induced by the meds from surgery and my body's sensitivity to them. I was confined to bed for most of 2 years following her birth and completely traumatized. I also developed extreme somatic motor amnesia. Basically, my body forgot how to work.
I have fought my way through various medical systems and treatments until I am now able to walk for an hour at a time, care for myself and my daughter independently and am planning to return to college to become a Doctor of Acupuncture and Oriental Medicine. I am currently training with an RKC certified Russian Kettlebell instructor and regaining motor skills using the Z-Health system of maneuvers. I'm in a cutting edge physical therapy and rehab program that is light years beyond what most people have access to and for this I am truly grateful.
The woman making this possible, Jen Waak of www.movefitfun.com, is a cancer survivor who quit corporate America and now is a movement coach/personal trainer. The Z-Health movements she is instructing me in have transformed my daily life, eliminating pain, restoring mobility and stability and creating functional strength. If I continue on this path it seems likely that I will also become more healthy and have a greater strength and fitness level than I ever had before I became disabled.
This won't change how sensitive my lungs are to certain chemicals but it will help me operate more independently and give me a fighting chance to survive and thrive.
I do not have a partner but do date from time to time. I am isolated from family who do not accept my queerness. I live in an area North of Seattle where there are few gay people. Any of you in Seattle? We should form our own coffee klatch or support group.
At first My mom put me in Cristian girls home ,what a dichotomy hugh?I was also put in a Christian Academy .
I must say it was a good experience.I graduated with a 95 average and went to college from there. I was on the Deans List there. I had 2 music and 2 academic scholarships.
Then I went to a big University and started the Gay and Lesbian Organization and was President. wow what an experience I am so thankful for ...helping others come out and accept themselves. Then I went to UT and was on the board of the Gay organization there.then It happened. I was committed to a state hospital and my life was a downward spiral from there.Since then I have burned,cut and overdosed many times. Then I got a wonderful Psychiatrist that saw me 4 days a week for 10 yrs until he moved.
NOw I see a therapist once a week and a m doing fantastic. I am Wiccan and love nature.My spouse and I are very happy...
thanks for listening, Blessed Be , Luan.
I'm hoping this group will remain active. I get plenty of good support from men and women on DS - but they are straight and I'm not out to them. Don't want to waste time going there, and perhaps lose a few online friends to boot! I'm disabled by degenerative joint diseases - my spine is "falling apart" with buldging discs, herniated discs, bone spurs that put pressure on my spinal cord, etc. Thus far, I'm not a candidate for surgery, and will be seeing a pain management doctor in December. I get around via manual wheelchair. I want to get as much exercise as possible, since there's a chance I could end up needing a motorized chair down the road. I'm the same person I've always been - happy, outgoing, witty. I'm not bitter or resentful about the fate of my physical health. And my libido is quite active, although I am single. I haven't slammed the door of hope in finding a partner. But it sure is hard when you are not ambulatory! I miss dancing and going places, the sports I used to do. I'm fairly new to being disabled. Still adjusting. Does one ever get fully adjusted to being disabled?
I am a woman of Faith and refuse to quit believing in myself and my healing. Hugs to all of you.
How were your Thanksgiving (US DS folk) celebrations? Lonely time for many of us who get isolated due to our mobility or other issues. This year I could stand, walk and carry two full plates to the table, both mine and my daughter's. Last year someone had to serve us and just getting from my truck to the building was all I could do. I have so much to be grateful for and I press on toward the goal of complete independence and increased dignity and quality of life.
Also, I haven't been sleeping well. I have no problem falling asleep at night, but starting about 4 a.m., I wake up hourly and have to change my sleep position because of pain. Then I get drowsy by 2 p.m. and have to nap for about 30 minutes to make it through the day. I was sent to pain management, and all that happened was that the surgeon spent time telling me AGAIN how sorry he is that he can't use surgery to help me. Then all he gave me was a prescription to get epidurals. I don't even take anything for pain, and I don't need epidurals. All I need is a pain pill I can take when the pain interferes with my life. So I have to start over on that one. I'm determined to get a decent painkiller to have on hand.
Is everyone else busy this time of year? I, too, hope this group will continue. It gets lonely, and I KNOW we can't be the only disabled lesbians out there.