Dercum's Disease Support Group

Adiposis dolorosa, also known as Dorcum's disease, is a rare disease characterized by multiple painful lipomas that arise in adult life. It occurs most often in obese postmenopausal women, but can also occur in men. The fatty tumors are most often located on the trunk and limbs with sparing of the face and hands. It was first formally described by Dr. Francis Xavier Dercum.

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  • usmithbiz

    Experienced DD heart palpitations?

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    I have been having mild heart palpitations for years off and on, but severely last month for almost 6 weeks continuously. I purposely began losing weight ((just because I am obese) and the palpitations have diminished in severity and frequency. I have not yet been diagnosed with DD, but I have all of the symptoms listed on the internet medical websites. I did see heart palpitations mentioned on...
  • deleted_user

    Dr. don't believe and I can't get a specialist

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    I am so frustrated. I have had multiple surgeries to have these lumps removed. I talked to my doctors and they all say it's in my head of course. These tumors are not supposed to be painful they said. I have them appearing in odd spots as well, like my ears and joints. I have been brick walled from the word go. Someone told me to get to a dermatologist and mention Dercum's disease. But I can't...
  • deleted_user

    Have not been diagnosed

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    Hello, I am new to this group. I have also suffered with painful lumps in legs, thighs, stomach, hips and arms for a long while. My mother passed away in 2000 she had been sick for awhile, but she would complain about pain all over her body, just everywhere. She was developing large lumps in ther thighs and arms. Some of them were about 4 to 5 inches long. Some were soft and others were more...
  • deleted_user

    Where can i get diagnosis from?

    Hi all i have read a few of your posts and thought that joing your group would help me come to terms with having dercum's and poss give me some answers to questions i have.I was diagonosed in september by my local GP who had seen dercum's once before in a 70 year old lady and thought my symptoms fitted but that a far is i have got my gp doesn't know of a consultant that deals with dercum's in the...
  • deleted_user

    Multitreatment for dercum's

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    Hi everyone! since we have a disease with no treatment or cure, I have been trying to log down what works and what doesn't so Ican help others along with your assistance treatments that work for Dercum's so we can give others with this Disease steps in how to manage the disease. I will start I have lipomas but the majority is lipomatosis which is everywhere. The surgeon will not remove the...
  • deleted_user

    Help Orphan Disease

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    Please come and join Help Orphan Disease on face book, like the page, tell us your story's, hear ours, daily articles on breakthroughs. Your presents can bring hope, and as victims' of Orphan disease we can fight together....come talk to us....
  • Hi everyone. I'm new to the atlanta area and looking for a doctor and others with dd
  • deleted_user

    learning to cope with Dercums

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    My fellow compadres! Stay positive! Try the lymphatic pump to help with pain. What is causing a lot of your pain is the edema in your system from your lymphatic system not functioning properly. When the trash cannot leave our body we get the fat tumors. This is how our body copes with the trash not leaving our bodies. I was diagnosed with DD last March from Dr Karen Herbst. I highly...
  • deleted_user

    poss dercums

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    hi not sure if i dercums as yet but 2 docs have mensioned itsymtomssmall lumps under skin (stomac ribs arms)constant pain some days wurse than overscant realy describe pain maybe something like stingy prickly pains drives me madhad loads of tests camera up and down,all clearloadsoff blood test nothing showing upalso 2 ultra scans on liver kidneys stomacrecently seeing a gastro specialst who as...
  • deleted_user

    Remedies to Lessen Dercum's Pain

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    Difficulties coping with pain caused by lipomas. I would really like to try some new methods to lessen the ongoing nagging burning/soreness felt everywhere, but more so along the back and, buttocks. What has been helpful so far while resting is to sleep on a 3inch latex foam mattress topper, using heat applications, or taking a warm bath. However, when up and moving around throughout the day,...
  • deleted_user

    im despratre to find a dr to treat me

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    i was just reacently diagnosed with dercums and i live in missouri seems like no dr will treat me because they are unfamiliar with the diseise.so discouraged!!!
  • deleted_user

    Mother of two, 33-year-old with Dercum's

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    Hi all.My name is Aaron and I had sudden onset of my symptoms about 8 months ago with one solitary painful lump in my left deltoid. It scared the crap out of me and I went to my doctor who said it was nothing. I went to doctor after doctor, saw specialists, went to the er on occasion for the worst pain flares, and watched my comfortable and familiar body begin to become something I did not...
  • deleted_user

    Looking for a Doctor in Arkansas

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    I am trying to find out if I have Dercums Disease and I live in Arkansas, is there someone on the forum that lives in Arkansas and can provide a name of a Doctor for me to check into...thank you so much!
  • deleted_user

    My symptoms

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    I've been sick off and on for over ten years now. I try to ignore it most days but more and more it gets me down.It all started right around the time I got meningitis twice within one year. Since then, a bunch of unexplained problems.I do have a real bonafide problem found on xray concerning my spine but besides that, I'm probably brushed off as a hypochondriac.Anyway, diagnosed with fibro...
  • deleted_user

    Having a great deal of pain

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    Hello, I have pain mostly right side of my body, I have a lipoma or nodule somewhere between my hip and knee. I had one removed when I had biopsy done which relieved the pain but now another has developed. I also have one or some develop my shoulder, elbow that is non stop pain and I woke up late at night because my apart of my knee was hurting it was beside my kneecap but lower another lipoma....