pk43: Oh poor soul, PLEASE don't say that. I am sorry you have muscular dystrophy, I am sure it can be a burden, but please don't feel like killing yourself, I am sorry you are depressed, if I could take your pain and depression away I would, I don't know you, but I am crying a little bit for you now, I so wish I could help you and take your pain away, Please message me if you want to talk. I am praying to God now to lift your pain and suffering away. Keep posting, please.

♥ Hang in there pk. Hugs

hey welcome to our corner of the internet we can make life fun here with our hugs and love that usually is unconditionally given by many here....I know a little about MD and it usually hits younger people and rarely older but how old are you? I used to work MD Camp here in MO where they had all kinds of loving volunteers who would support those with MD who came to camp...we had a blast at camp...have you ever gone to MD camp? It is usually run under the Jerry Lewis name in many places around the USA....

I know one thing I sure would have liked having one of those electric speedy wheel chairs for a test drive but your right I would not want to be restricted to one myself either...so I am empathetic with you on that portion but try to enjoy life....hugs bill

I really appreciate the support. I am 32, was formally diagnosed 3 years ago, work full-time for an answering service. I hate my life. I can barely walk, am weak and frail, am lonely and sad and just feel lousy. I really appreciate your replies Stimpy and Bill. It really means a lot to me.

And Brandy. I live in Austin, Texas, am from Pittsburgh, Pa and am just trying to live. I always knew that something was wrong with me, I just didn't know that I had an incurable neuromuscular disease. I try to stay out of the cycle of self-pity, depression and resent towards God but I have to live with my condition every minute of every day. It's exhausting and I can't take it anymore.

Can you talk to a therapist about your feelings? Have you contacted your local Muscular Dystrophy
Organization? Maybe, they can put you in contact with others in the same situation you are in. Or provide counseling over the phone? Or help in some way.

I started seeing a therapist. There is nothing that the local MDA does for people in my condition. There's not much anyone can do for me. As weak as a normal person feels after working out or when they have the flu is as weak as I feel all day, every day. I am trying to avoid a cycle of self-pity, depression, hopelessness and resent towards God, but I keep falling into that cycle.

Your life is very important, and I'm sorry for your terrible suffering. Are you taking some rx to help with anxiety and/or depression? Have you tried a supportive church? Friend me if you want specific info about a possible church. I care about you regardless. Keep in touch.

Thanks. I appreciate that. I am not, I used to be on Prozac and Busparone but was sick of being on medication, so I just stopped. I am going to start again. I have Depression and Anxiety BAD, mainly because of my health. I have not joined any support groups, this is where I am starting. I appreciate your help. I want to make the most of my life.

MD is a catastrophic disabling disease and I am sorry you suffer so. It takes a lot to cope, no doubt. The good news is there is a lot of support available. I urge you to research and find and hook up with as much of it as you can find. I think DS has a support group for it and the Internet will lead you to more. Good luck. You can have a good rewarding life with MD. Many have.

Thanks for the compassion WanderingVet. it is catastrophic and devastating. I am looking into support groups, counseling and I plan on going back on anti-depressants and whatever treatment I can do. I am an alcoholic, which is destroying me faster and I have to quit drinking, on top of all of the other things I have to deal with. God I hope that I can live a rewarding life. I hate my life.