Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
My family doc ran another thrombophilia screen on me as my fianc and I want to have another child and I developed a DVT with my last pregnancy (and DVT/pe from bcp a few years before that.)
I wasn't expecting anything to show up as they ran a panel after my first clot but lo and behold both activated protein c resistance (which runs in my family) and protein s deficiency showed up. The hematologist my doc was speaking to recommended a follow panel six weeks later as the likelihood of lab error was greater than the likelihood of those both showing up. So seven weeks later here I am with the same results. I'm waiting to get in to see the hematologist now but just wondering if anyone else is also dealing with deficiencies of protein c and s. I also have factor v in my family down my mother's line (my grandfather and great grandmother).
Anyone else out there with any experience with the two of these?
Go big or go home, so they say.. Hah!
I wasn't expecting anything to show up as they ran a panel after my first clot but lo and behold both activated protein c resistance (which runs in my family) and protein s deficiency showed up. The hematologist my doc was speaking to recommended a follow panel six weeks later as the likelihood of lab error was greater than the likelihood of those both showing up. So seven weeks later here I am with the same results. I'm waiting to get in to see the hematologist now but just wondering if anyone else is also dealing with deficiencies of protein c and s. I also have factor v in my family down my mother's line (my grandfather and great grandmother).
Anyone else out there with any experience with the two of these?
Go big or go home, so they say.. Hah!
My case is different from yours, because I have protein C deficiency; protein S is fine. But here is my story: I had a DVT two years ago and both my two hematologists believe that happened because I took bcp for many years, which I shouldnt having that deficiency. But I didnt know I had it. Now we know that this problem runs in my mothers family. However, none of them (5 women and two men) had any problems, only poor circulation and varicose veins. The thing is that none of those women took birth pill control. And I did. So the doctors think that I had a DVT because I added it to the blood. A cousin of mine (my mothers related) had a PE a few months before I had the DVT. So I stopped the pill. That was the advice. Nothing more. I was on warfarin for six months and then I stopped it. I still wear my compression stockings but I have to confess that I skip them very often now because of the hot weather and the beach. I was advised to wear them imperatively during long car trips and flights, and have heparin injections during long flights as well as during pregnancy, if I decided to have a baby. And thats all. Of course I know Im at risk of having another DVT or even a PE, but one of the hematologists said I was too young to stay on warfarin after an episode, having in mind that I took the bcp. The other one wasnt so optimistic and wanted me on warfarin for life. I had to choose. And I chose not to. Hope never to regret it
The best of luck,
Mathy