
Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
Factor V Leiden and lifetime coumadin

amelhu
I have been on coumadin for 8 months now and my ultrasound showed that my clot is still unchanged. I really want to get off of coumadin, but now my dr is saying that I'll be a life long coumadin patient and she says its because I"m FVL. I asked the nurses and PA's if they have ever known any patient who were FVL who were able to come off of coumadin and they all have said no.
Is there anyone out there who is FVL who has come off of coumadin? What is the secret?
Is there anyone out there who is FVL who has come off of coumadin? What is the secret?
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If you think about it, FVL is a disorder that makes your blood clot too much, and taking warfarin helps get rid of excess clots. If you take away the warfarin it will take away the 'protection' and blood clots will run freely in your body and who knows what will happen. The body is still going to produce the clots and if you take a warfarin a day it will protect u from DVT and PE, and more importantly death!!
Think about it x
Nurses and doctors at one place will tell you to stay a lifer, go to another office and they'll take you off. Part of the unfortunate side effects of FVL being such a new medicine.