I’m a very healthy individual who rarely even gets a cold, but had a behind the knee DVT & subsequent bi-lateral PE in September 2012 which due to the circumstances almost killed me. Was on warfarin for 10 months, then did all the testing that showed I was clear, & no reason as to why I clotted. It was just the perfect storm. I found that while there is plenty of information on the illness itself, there is little out there that speaks to life after a clot. When I found this forum, it was a life saver, & I looked at it regularly. I am eternally grateful for all the posters whose experience & insight helped me tremendously, & I vowed that I would come back one day to try & repay the kindness. As some posters said, many recover from this event & just get on with their lives, & I’m happy to say I am one of those people.
As I approach my 5 year post clot anniversary, (& I’m still very healthy), I can tell you that my biggest enemy now is complacency as the memory of it fades. I’ve travelled by car & plane all over the world since my clot, & take the necessary precautions for that, but the day to day stuff is what I have to work on the most (ie making sure to not sit at my desk all day without moving). I have no residual effects of my illness except for a couple of infrequent & minor physical reminders, & honestly the mental aspect of it has been the most challenging, the false alarms, & wondering if it will re-occur etc. Overall though I don’t think about it much & just enjoy my life, since I know how quickly things can change.
To everyone out there, there is life after a clot so don’t give up!
It will be two years since I was diagnosed with a DVT at 10 weeks pregnant. I had to take the Lovenox injections until my baby was 6 weeks old, so I stopped in November, 2016. I was referred to an Oncologist, where blood testing was done a year ago and it showed that I have factor II gene mutation and the D-Dimer was high at that point. I wasn't put on any blood thinners, though. I have recently...
My doctor told me yesterday that I can discontinue taking Xarelto. Just stop. So I have. Has anyone else just stopped talking it. What can I expect ? Is there withdrawals? Am I at a higher risk now even though my D-dimer came back negative ? I'm just worried that stopping it cold turkey isn't the right thing to do even though I got word to do so from my Pulmonologist.