Cushing's Syndrome Support Group
Cushing's syndrome is an endocrine disorder caused by excessive levels of the endogenous corticosteroid hormone cortisol. Symptoms include rapid weight gain, atrophy of the skin (which gets thin and bruises easily) and others. Patients frequently suffer various psychological disturbances as well. Join the community to get support and find others who know what you're going...
janetmojo
Just wanted to follow up my original post with an update. Have been poked and prodded for the last 3 weeks or so and everything came back Cushings positive and they have located a 3cm mass on my left adrenal. 24 hr. suppression test was so screwed up she questioned if I had actually taken the pill at 11pm. Endo is consulting with surgeons today about scheduling removal soon. I am SO SO glad to finally know this isn't all in my head.
BDen13
Sounds like you're all set then. A 3cm adrenal mass is huge. Adrenalectomy is a lot easier surgery than the pituitary surgery.
deleted_user
how did you find out about adrenal mass? Were there a lot of symptoms? Just curious as I had a ct scan of abdomen and they found an adrenal mass. If you can give any info, I'd appreciate it. Having an MRI beg of May. Good luck!
janetmojo
Well I guess most of my blood work and tests pointed at adrenals instead of pituitary so they did a CT scan last week of the adrenals with the contrast dye and found one...calling surgeon today!
equinegurl
Thanks for posting, I just started down the road of testing for cushings. I too, had been told my issues were in my head so a part of me is really hoping they come back positive so at least I will finally KNOW what is wrong. Good luck with your surgery!
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