Crohn's Disease & Ulcerative Colitis Support Group
Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointestinal tract from mouth to anus, and can also cause complications outside of the gastrointestinal tract. There is no known medical or surgical cure for Crohn's disease, but there are many medical...
I am new to this site, wondering if anyone has severe Crohn's like I do. It is through my entire digestive track. I even get ulcers in my mouth with bad flare ups. At one point I had over 30 ulcers just in my stomach, a lot more throughout intestines. Had to get blood transfusion. Always taking prednisone, was on humira with some improvment. I never go into full remission. I vomit about 3 x a week at my best. Up to six times a day at my worst. Some recipes would be great. I eat very small portions, soft and mushy. Most soup does not agree with me. I have a very hard time with any cooked fruits or veggies. No beef or turkey, limited on chicken and pork, no sugar, low carb. Limited on any dairy products. Eggs I can usually eat. No protien shakes, no boost or ensure, they make me really sick. Nothing fried or spicy. List goes on. I eat 1 - 2 times a day, small meal with multi vitamins. I usually skip a full day or two to rest my stomach two three times a month. Yes, I go up to 48hrs without food and very little drink. My record, set about 5 years ago was 15 days with no food sucking on frozen gatorade. Hospital would not admit me, no insurance at the time.
As for ideas for eating....since so many things give you trouble maybe keep a list of foods you can eat vs a list of foods not to eat. The good list would be easier for you at this point. Then stick only to the good food list. Do not eat any foods not on that list.
You say you only eat a small meal once a day. Could you maybe try to eat tiny bits throughout the day? like a bite every hour? Or a bite every half hour? That might get you more food though a day.
If eggs work for you, eat lots of eggs. For a while I ate eggs twice a day. I also ate tuna a lot at one point because that worked for me. I went a long time without eating any sort of fruit or veggy. I am impressed that you can tolerate a multivitamin. I cannot take a multiV without huge stomach pains.
Can you eat rice? Bananas? Peppermint tea was helpful for me for a time when I was really having trouble.
I hope you can start to feel better and that others can give you some ideas also. This site helped me a lot when I was first ill and trying to learn how to live with my illness.
Good luck and best wishes,
Rachel A.
I'll keep you in my prayers, I hope you find some answers and start to feel better soon,
Hugs, Jean
http://chinesefood.about.com/od/breakfast/r/congee.htm