maybe you have an adhesion-have you had infections? They can cause adhesions in your abdomen that can cause pain. Have you had a Ct Scan? You should have a work up....

I'm sorry to hear you're in pain. Unfortunately, I can't offer any helpful advice on how to manage it (besides what you are already doing), but I agree with debmandy that you need to find the root cause of this pain. I realize that everyone is different, but I've tried acupuncture along with Chinese herbs for pain, and it didn't work at all. I hope you get some relief soon.

debmandy- well I ended up in the hospital overnight about a month ago, I went in for the pain and ended up being told I had: strep throat, a urine infection, and low potassium...
I got a CT then, they told me my inflammation was low... then sent me home with pain meds and prednisone.
Nothing has changed from then till now though, pain wise. I'm still in agony.

Heating pads and warm baths help. Also mint tea and green tea are both really soothing.

From a pill stand point. I always forget about tylonol which can ease the pain without effecting your stomach. You can also get a script for
Zofran for nausea. I know you don't want to take any more narcotics and I understand that. But there are pills you can take to ease stomach spasms like bentyl and I also find Xanax to help too. It relaxes me so that I can drift off to sleep. I know it's easier said than done but when you get yourself all worked up from all the pain you are in it makes it worse. Deep breaths, heating pads and some antianxiey can do along way.

I hope you feel relief sooner rather than later!

My personal experience was when i did liquid diets, I had no way for my body to absorb the extra acid in my system and I ended up in more pain. People say give your intestines a break, yadda yadda, I get that, but ... it never worked for me.
Acupuncture really helped me - most insurance plans will cover some alternative treatment or at least a percentage of it now. It honestly feels great - I know that seems so weird - but it's a total mental thing to get over the needle part - you can't even feel them honestly. You should check with your insurance company and see if they put out anything towards it. Most companies will recommend someone to you if you call too.
If you go to Whole Foods, there are lots of homeopathic remedies that are for abdominal pain, etc. - they get very very specific like pain related to ulcers, pain on the right side, etc. -- however, you have to be careful that they don't contain anything that's going to stiimulate your immune system.
I'm so sorry you're in so much pain. I had UC for 21 years and had surgery - obviously that's different for UC versus Crohn's but I relate to your long history and frustration.
I hope you can find something that will help you.

Ok here is my take on this. You might not agree and some out there will disagree with me. First off let me tell you I have had Crohns for 35 years and I think I know a thing or two about pain. Crohns is one of the most painful diseases out there and I have gone throught a number of complete blockages and a number is operations. First thing Monday is to find a new GI second if you are in pain get yourself to the ER. You should not have to live a life in pain. If you have insurance demand that they test you with CT scans with contrast and a colonoscopy to find out what is happening to you. I am thinking you might need an operation for your disease. You could have a blockage meaning even clear liquids can not get through or you could have an intestine adhesion. You have to get this looked at now and I feel you need a new GI. Eastern Medicine is fine but it will do nothing for bad Crohn pain. The only meds that work for these kind of pains is Morphine or Methadone and if an operation is needed then these meds or any other pain meds is not needed. Please get help soon and I hope you get a better quality of life with no pain. I have been in your shoes.

I agree with everything Bart wrote 100%. You should fire any doc that doesn't take your pain issues seriously.

Your disease isn't under control - Pain killers kill pain-quit taking them and pain is back... Get you disease under control and pain seems to be under control too - Yes - I agree it may be you need a new GI one with a specialty in your disease... I don't do meds well at all - Those for CD/UC made me worse - pain meds cause me to throw-up - I hate throwing up....
I invested in a jacuzzi - awesome! I take time to relax, I see a chiropractor, do my best to eat healthy - no junk - sugars bring on the pain for me... I avoid them.
And I read a bar of soap between the sheets while you sleep takes away the pain in your legs! We do this (I use oil of olay) and it works!!! Don't ask me how but humor me & try it! Do a google search and see if you can find more info on it! I'm really not nuts...least I don't think so.... xo! sorry you suffering...

Ps... Pain is your body giving you warning that something needs looked at - It is best not to ignore these warnings by trying to lessen the pain with pain killers unless you are doing so while seeking help to address the real problem behind it all! Hugs to you! Hope you find solutions fast!

I agree with the others, get a second GI opinion. You might also look at www.ldninfo.org It really helped me. Good luck!

Thankx for the advice and the sympathy/empathy everyone.

Ashley- Just like Celestial Seasoning tea you find at WalMart, or do I need to get it from somewhere special?

Imneiss- Not gonna lie, it sounds weird, but I will give it a try!! Thankx. =)

I have considered getting a new doctor/s but I've always been so please with the one I have now, and he has run tests, done a CT on me, etc.. So it's not that he's shown no concern, but the tests aren't showing any problems.
I see my GI next month, and I am going to have him schedule a colonoscopy and go from there.

i am taking 400 mg tramadol total of 8 pills , 4 pills in the morning and 4 pills in the afternoon, also 2mg xanax before bedtime , important part is your diet, no sugar or surgery stuff , no dairy , no stress.discus it with your GI doctor.

good bless.

Any tea will work! I like the refresh tea which is mint and tarragon and feels so good on the tummy. They even sell it at Starbucks. If you mix it with china green tips it can energize you without getting that caffeine buzz and subsequent bathroom trip :)

Mint and camamoile are the teas that are supposed to help but I really love mint! Cold water can sometimes really upset your tummy and even warm water with limon can be soothing.

How are you feeling? Any better?