Got this from webmd.com, never been on Humira myself, but hopefully it will help...

http://www.webmd.com/drugs/drug-147784-Humira+Crohn%27s+Dis+Start+Pck+SubQ.aspx?drugid=147784&drugname=Humira+Crohn%27s+Dis+Start+Pck+SubQ

Redness, itching, pain, or swelling at the injection site may occur. If any of these effects persist or worsen, notify your doctor or pharmacist promptly.

Remember that your doctor has prescribed this medication because he or she has judged that the benefit to you is greater than the risk of side effects. Many people using this medication do not have serious side effects.

Tell your doctor immediately if any of these unlikely but serious side effects occur: fast/irregular/pounding heartbeat, stomach pain, blood in the stools, mental/mood changes, severe headache, easy bruising or bleeding, dark urine, yellowing eyes and skin, leg pain or swelling, numbness or tingling of the hands or feet, unsteadiness, unexplained muscle weakness, vision changes, extreme fatigue, joint pain, butterfly-shaped rash on the nose and cheeks.

Seek immediate medical attention if any of these rare but very serious side effects occur: seizures, chest pain.

Though unlikely, you may have a slightly increased risk of developing new cancer (e.g., lymphoma, basal and squamous cell non-melanoma) due to this medication or due to your medical condition. Tell your doctor immediately if you develop symptoms such as: unusual lumps/growths, swollen glands.

Tell your doctor immediately if you develop signs of infection while using this drug, such as: fever, chills, persistent sore throat, trouble breathing, painful or frequent urination, unusual vaginal discharge, white patches in the mouth (oral thrush).

Tell your doctor immediately if you develop signs of tuberculosis infection such as: mild fever, persistent dry cough, unexplained weight loss, night sweats.

A very serious allergic reaction to this drug is rare. However, seek immediate medical attention if you notice any symptoms of a serious allergic reaction, including: rash, itching/swelling (especially of the face/tongue/throat), severe dizziness, trouble breathing.

This is not a complete list of possible side effects. If you notice other effects not listed above, contact your doctor or pharmacist.

Contact your doctor for medical advice about side effects. The following numbers do not provide medical advice, but in the US you may report side effects to the Food and Drug Administration (FDA) at 1-800-FDA-1088. In Canada, you may call Health Canada at 1-866-234-2345.

Thanks, he has the tingling and muscle weakness that his GP is adament is b/c he is insulin dependant but his sugars are really good now. Do u use it?

Sorry no, never been on Humira. I'm on sulfasalazine and vicodin/tramadol.

I hope your husband starts feeling better soon. If the GI is adamant that the side effects aren't from the Humira, you might want to consider finding another doc.

Hi again, sorry I am not familiar with your meds. He has a gastro Dr that he can't see til March but support staff from Humira will call Dr to see if he can get in earlier. Cute puppy, Where in the world are u located?

Wendy,
I think that its time to get a second opinion.

Fraz

Hi Fraz He can't get to see his GI til mid March. I NEED to talk to someone using Humira!

Hi There,

I am currently taking Humira and have been on it since early October. What are some of the side effects your hubby has been having? I have noticed some things here and there but nothing too crazy. I had really bad joint pain, especially in my knees and shoulders for a while but that is mostly gone now. Is it helping with his CD/UC? It has been a miracle for my UC. Let me know if there are any questions I can help with!

Steph

Hi Steph...he started in December, he thinks it has helped in that some nights he can actually stay in bed all night. The fistula isn't acting up either. The issue he is having is that he is finding it hard to stand up straight at times, says he is weak (still going to work) and seems to stumble at times, something is just not right, but this didn't show right away. Humira support said she would call his GI to see if he can get in fastr than March anhe has a neurologist appt in September!!! As his wife, I am sick with worry, daughter getting married this Aprl and he HAS to be well for that. Can you help???

Wow - that definitely seems a bit scary.....I feel so bad for you guys. I find it astonishing that his GI doc cannot see him sooner than mid-march? Have you called to tell them about these issues? I'm sure you have but I just cannot imagine my doctor not being worried about side effects like those. I wish I could help more, but its so hard to know whether or not a reaction is normal as everyone is so different. When I told my doctor about the joint pain I was having he didn't seem to concerned....and it actually did go away for the most part. I truly hope you get some answers soon, I wish you and your family all the best.

Ok, so here is the latest. In Canada if you can't get into your regular Dr you can go to a walk in clinic. Husband did this today and is waiting for an appointment for an MRI, as well as an earlier neurologist appointment than September. He also will see his GI this Monday.
He should have an injection this Sunday but will NOT take it. It is sounding like he will stop it all together, not sure yet. This is allbecause he is unstable walking an weak. Still haven't heard from any Humira users with this issue.