Crohn's Disease & Ulcerative Colitis Support Group
Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointestinal tract from mouth to anus, and can also cause complications outside of the gastrointestinal tract. There is no known medical or surgical cure for Crohn's disease, but there are many medical...
I'm sorry about your diagnosis as well as your husband's. Unfortunately it seems when it rains it pours -- you know? That's how it was in my life too. I have a 10-year old daughter who was diagnosed last Christmas with Crohn's Disease.
Really, the best place to find information on Inflammatory Bowel Disease including Crohn's and Ulcerative Colitis is to check out the Crohn's and Colitis Foundation of America. Their website is www.ccfa.org
There is a ton of information there. This is the place I was directed to by my daughter's Pediatric GI to get the best and most accurate information about the disease.
As for support -- this place is a good one to start. The CCFA also lists support groups that may be in your area. I believe you have to go into the state/local CCFA chapters area.
The best thing though is to be there for your husband as he's been there for you. Remember that while IBD is a chronic disease, it can be put into remission and people living with it can live very normal lives thanks to new medicines. Just keep in mind that getting to remission can be a lengthy process so be patient. It's been 10-months since my daughter's diagnosis and after months of different meds -- only now has her doctor found what works for her to keep her Crohn's under control.
So keep the faith -- it will happen. If you read more about IBD on the CCFA website I'm sure you'll probably come up with more specific questions that people here on DS can help you with.
Good luck with your quest for information. Knowledge is power!