Crohn's Disease & Ulcerative Colitis Support Group
Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointestinal tract from mouth to anus, and can also cause complications outside of the gastrointestinal tract. There is no known medical or surgical cure for Crohn's disease, but there are many medical...
When you have experienced a few accidents and realize that you need to do something to go on with your life, there are other challenges. As I saw it I had two options - stay at home close to the toilet or wear a pad or diaper. Most days I just need a small and as discreet as possible protection. In bad days or when traveling long distances I need more protection. The problem is that apart from BIG diapers, I think all products are made for urinary incontinence and most are made for female incontinence. The body shaping is all wrong for me as a male with "the other kind" of incontinence - and that must be the same for the ladies in here I guess? Why can they develop a good, discreet, fit for purpose protection for fecal incontinence? I have used various products from Attends and Tena - but they are all designed for urin...
Another issue for us males. Waste bins are never located in the stalls. If you manage to sneak in a change you can wrap the used product in paper and carry it to the waste bin next to the sink... Why can't we have waste bins like they have on ladies toilet? We can always use the disabled facilities - but that attracts a lot of raised eyes and it is silly if the only need is a waste bin...
Another issue for us males. Waste bins are never located in the stalls. If you manage to sneak in a change you can wrap the used product in paper and carry it to the waste bin next to the sink... Why can't we have waste bins like they have on ladies toilet? We can always use the disabled facilities - but that attracts a lot of raised eyes and it is silly if the only need is a waste bin...
I am so sorry you feel so lousy. Feel better!
I have tried Immodium - but have been told to be careful with too frequent use. I will use it occasionally, but my doctor told me to be careful. It is very frustrating... I have changed medication several times since the flare up started - but nothing has had a longterm effect. I have been better in periods and hope (!!!!!) that the progress continues. I hate being required to wear a pad or diaper, but I hate even worse to have accidents without protection. I am looking at my diet and try to find out what I can and can't eat. I have some ideas - but in periods the only solution to avoid accidents is to avoid eating when I am planning outdoor activity. Not smart or healthy - I know.
I am trying hard to be and think positive - sinking down in depression is not helping....
But you always need to be careful. I just weight when I am traveling or away from toilets to getting constipated or plugged up. It is not a long term solution. I just hope that you find a long term solution and get better. No one should have to live like this :)
Some comments: There are probably lots of good diapers. The Nasa undergarment is a diaper - they just don't talk about what it's for. But again - this is primarily designed for absorbing urine.
I have been seeking advice at a medical supply store - and I have been helped to find the most suitable there is I guess - but nonetheless this is products primarily designed for bladder control problems and also primarily for females. When I am forced to wear protection I want it to be as small and discrete as possible, it should be comfortable. I guess there are so many of us world-wide with these problems - and there are so many different products - why not tailor one for our problems?? Maybe I am whining - as a male this is my first experiences with wearing pads since my baby diapers - and I don't remember much from these days ;-) The females on the forum are probably more used to the challenges of a chafing pad etc.
Personally I hope I can forget the whole issue as I did with my baby diapers....