Crohn's Disease & Ulcerative Colitis Support Group

Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointestinal tract from mouth to anus, and can also cause complications outside of the gastrointestinal tract. There is no known medical or surgical cure for Crohn's disease, but there are many medical...

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strongbeliever 08/14/2019

I am trying to stop a bad flare of UC for 3 months now. I've had UC for 25 years, but this is the worst it's ever been. I've been on Delzicol for maintenance and prednisone, but it's not working at all. I am starting a Xeljan tomorrow and wanted to know if anyone here is on it or has been on it. Thank you!

JeanCarlin 08/25/2019

I have never been on that, I have used Humira that helped for about 2 years then just wasn't good enough, now I get Entivio infusions about every 8 weeks thta seem to be helping. Good luck!!
Sorry that this site isn;t quite as active as it used to be, I try to check in evey couple of days but was just away on vacation for the last 9 days and haven't checkd here for a while.
I hope you get the relief that you need soon, it must be bad if the pred isn;t helping...I'll keep you in my prayers....hugs

LongieWithCrohns 09/17/2019

Hang in there buddy. I've just recently started Stelara for my very aggressive Crohn's. I hope you get relief soon. I've been dealing with CD for about 20 years. It's robbed me of having a full and enjoyable life. Cimzia I was on recently and it caused my Crohn's to flare up horribly and within a couple of days I was in the ER for surgery. Stay strong

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