COPD & Emphysema Support Group
COPD is a progressive disease characterized by airflow obstruction or limitation. Emphysema is characterized by loss of elasticity of the lung tissue, destruction of structures supporting the alveoli and of capillaries feeding the alveoli. Both have symptoms that include shortness of breath, among other respiratory troubles. If you are a COPD or Emphysema sufferer, join...
I watched it. It was long. Dramatic difference in that man who could hardly breath, before & after the surgery. Dunno if the risks outweigh the benefits. If the results lasted more than 3-5 years it would be more attractive. Wish they could just stop the progression. Digit posted something about the stent stuff a while back. Dunno looks weird:>)
IBV Valve System is designed to work using the same principle as LVRS in that the air is redirected to a healthier part of the lung and the bad part of the lung behind valve collapse leaving more space in the rib cage for the good lung to expand, which results in easier breathing.
We have a few people on this site who have had the LVRS who are living what sounds like pretty darn good lives since their surgery.
We also have people on this site who have been in the IBV studies who are also reporting successful out comes.
Most people who opt for this surgery are struggling to breath each breath, even at rest like the man in the video and they are finding great success.
This is my understanding of LVRS surgery and the Valves .
I hope others who have had the surgery or the Valves would respond to this.
I also hope everyone with Emphysema will watch the video.
Hugs and Love to all,
Holly
I know they are using the Valves for lungs that are leaking air.
Are the IBV valve approved by FDA for Emphysema Patients now, or do we only have LVRS available to use at this time.
The only information I found was that the trials for IBV valve not accepting any patients at this time.
Does anyone know?
Thanks, Holly
just me....sorry
It is hard for me.
Go in peace and find what is out there!
I know it can be scary some of this information, but its also offering help for so many.
The doctor in the video said that LVRS extends life expectancy and patients go from low fev1 to much higher fev1.
Patients go from breathless to breathing.
So this is not a bad news, its a good news for many.
Hugs and love to all,
Love Holly
Thanks so much for your Bravery and courage for being part of the IBV Trials, your amazingly strong and brave, Anna too!
Also thanks for straightening me out on the IBV trials, its too bad they didnt get better results.
I hope the doctors and researchers find an easier way to reduce the lungs for us.
With the gratest respect to you and the other brave people who put them selves out there in these trials, I am forever greatful.
Hugs and love Always,
Holly