Hi Cas! Welcome to our awesome group.

Thank you Deegran.

Yes welcome! Hadn't heard of that disease... will have to look it up.
Keep us. All posted!

Hello and welcome! I'm so very sorry for the reason you are here, but I'm glad you found us. I'm sure hearing you may have bronchiolitis obliterans is very scary and quite a blow. Bless your heart!

I certainly hope you don't have BO, but the sooner you get an accurate diagnosis, the sooner you can get the proper treatment.

Keep us posted.

Best wishes,
Susan

Welcome!

Welcome.

I'm sure you will enjoy our site.

welcome cas!
it seems like one of our other members got that dx recently also.
what kind of treatments do you do with that? (inhalers, 02 etc)

i'm just curious because i have copd but also i have been told i have an "interstitial lung disease" that i see a dr next month about----so i'm very interested in all of the different lung diseases that affect us.

i think copd is easy for dr's to say we have, but there are lots of different kinds i'm finding out.
with different ones being found, i'm wondering if treatments will be different of same.

anyway, i'm sorry that you are going thru the fear of learning you have a lung disease, but welcome here!

Well I'm sure you've looked it up as I did just did and it looks very scary. I always look at worse case scenarios. Even with that there is an option. I believe there are people in here with successful lung transplants. At your age I should think that could be an option if ever need be. Whatever, I hope you continue posting and let us know how you're getting along.

Thank you all Yes I am really scared and worried because nothing I've read or been told about BO is even slightly positive. I haven't been put on any drugs yet or oxygen. I have my second opinion tomorrow. Will keep you posted.

Have a good day.
Cas

Oh I have an inhaler to open up the airways a little but that's all. I for got about that !

Cas after looking that up I have symptoms of that...and have worked around lots of chemicals and ground plastics . I had a cat scan in Dec and suppose to do a follow up but I canceled it as they already said I had emphysema and figured if the Scan showed anything immediately life threatening or lung cancer they would have said hurry up and get down there. Now I am finding out there seem to be a multitude of different serious lung diseases. What criteria are they looking at that they suspect this? I guess I better call and reschedule my appt.

I just seem to get worse. Can't hardly walk across the room. I have had some better days but most aren't very good right now. I will be thinking of you.

I have had nocturnal oxygen for 3 years but now need it on exertion.
So anytime I am not sitting perfectly still. I hate this constant struggle to just breathe!

Welcome tho the group.

I imagine it's especially hard to have to deal with these physical problems and now not to have your work to distract you. May I suggest you find some other not so active folks for friends....maybe older like me: ). Then take up bridge, majong, dominos, whatever so you make friends outside of work and have a social outlet.
I'm thinking of your mental health.

Thank you J.H. You're right it is rather isolating. I haven't actually opened up to my friends about this yet and they think I am still working. I know I need a hobby something relaxing and slow paced. I fear I am becoming a hermit. Feeling exhausted most days is horrible.

i hope your 2nd opinion went well.
with any illness, i think finding a dr that you like and trust is an important part of our care.
thoughts & prayers are with you.

msdgy; i'm glad you have decided to follow up on your scans. it sounds like you may need daytime 02 also so i hope you bring that up to your dr also.
when i started daytime 02 i was amazed at how much stronger i felt....then i had to work up my endurance once i could finally breath.
you are in my thoughts also.