Congenital Heart Disease Support Group

Congenital heart disease is heart disease in the newborn, and includes congenital heart defects, congenital arrythmias, cardiomyopathies, and hypertrophic cardiomyopathy (HCM). CHD can describe a wide variety of different abnormalities affecting the heart. CHD occurs when the heart or blood vessels near the heart does not develop properly before birth.

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142 Posts

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Bicuspid aortic valve and palpitations

Posted by: Charlotte7598

Posted: 11/25/2023

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Anyone here with a bicuspid aortic valve? If so, do you frequently experience palpitations?I also tend to have slight... READ MORE
the discontinuance of name brand Coumadin

Posted by: Bsmom

Posted: 06/14/2020

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I am new to this thread. I have a 45 year old son with Down Syndrome that has a St Jude's Mechanical Valve. This... READ MORE
New to group

Posted by: Alma3000

Posted: 06/29/2019

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I am new to the group. I am 68 years old male. I had a complete heart block (3rd degree) three weeks ago. My... READ MORE
A little about me.

Posted by: TheManningFamily

Posted: 04/24/2019

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Hi, I have an extra chamber in my heart. I am an adult living with Cor Tritriatum, mitral valve prolapse, mitral valve... READ MORE
Adults with Congenital Heart Disease

Posted by: Alexis25

Posted: 08/01/2018

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Hello Everyone, my name is Alexis Miles and I am a Physician Assistant (PA) student at Dominican University in River... READ MORE
20 week scan diagnosed with truncus ateriosis

Posted by: Jash

Posted: 07/06/2018

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Hey guys ... after 10 years of marriage i finally conceived in my second attempt of FET and was so happy. In my 20... READ MORE
Post ASD repair

Posted by: LDobbins

Posted: 04/16/2018

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Hey ya'll!! Very excited to find an online support group like this one... Funny story, since my 30th Birthday I all of... READ MORE
Just joined! Born with HLHS

Posted by: enchantress

Posted: 08/12/2017

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I just wanted to say hi. I was born with HLHS (hypoplastic left heart syndrome) I basically have half a heart. I'm 16... READ MORE
Hypoplastic Left Heart Syndrome

Posted by: deleted_user

Last Reply: enchantress 08/12/2017

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I am currently 33 weeks pregnant and my daughter has been diagnosed with HLHS. I've avoided doing internet research... READ MORE
Bicuspid Aortic Valve Disease

Posted by: No_ONE

Posted: 02/11/2017

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Everything looks good, TMT test, echo, xray, blood, ECG. Doctors discovered that I am born with bicuspid heart. Its... READ MORE
Cardiomyopathy... is Curable.

Posted by: charles46healthman

Last Reply: Viper 12/03/2016

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My health story is similar with so many persons that have been diagnosed with Cardiomyopathy. I was a young man of 42... READ MORE
Long QT Syndrome.

Posted by: helpmeheart20

Last Reply: Viper 12/03/2016

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Hi all. Really long post, I apologize. I'm 20 years old and since I was 3 years old I've had faints/mainly seizures.... READ MORE
I just joined.

Posted by: PaleOxymoron

Posted: 11/18/2016

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I just made this account. I was born with a congenital heart defect that runs in my mother's side of the family. It... READ MORE
Just found out my daugher has DAA

Posted by: rose0908

Posted: 07/30/2016

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Does anyone here have experience with Double Aoritc Arch? My daughter was born with a heart murmur. Her doctor caught... READ MORE
low blood pressure?

Posted by: jimpoe

Last Reply: IGotThis 02/22/2015

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Hi gang i know most of you know my constant bp problems but I've running low the last couple of months and today it hit... READ MORE