I haven't checked in in a while , but seems this forum is quite inactive ? Is there another forum for cvid members ? I would love to see that people have somewhere to come or go to for support. It is so helpful talking to other people going through this . Is anyone aware of other Cvid or Iga deficiency support groups ? Thanks .
Ok - I'll start a new thread.Anyone have issues with duodenal/peptic ulcers ?That's my latest, at first docs thought it was kidney stones but turns out it ulcers. I actually think I've been dealing with this for some time, it just got quite worse (painful !). Waiting for a scope in the next day or so. Ugh.
I have another diagnosed AI disease, but not on meds that supress the immune system and can cuase low Ig's. I have been getting lots of infections that last a long time and require lots of meds to treat but no pneumona or bronchitis. I had labs done that showed an IgA of 53 (87-397) and my IgG of 660 (700-1600). Im constantly very fatigued and I feel like something the cat dragged in...