Glider, I am so sorry about your GI problem.
I thought I responded to this post, but I think I fell asleep.
Take it easy tonight.
I hope you feel better tomorrow-will write more when I am alert, and have a couple of wuestiok x

OK, so I apparently fell asleep writing that first post...sorry about that!

Glider, Glider, Glider...what to do with you? I have no Idea about SubQ, but I know about basic health needs.
Now I know you like to cram all the good stuff into every day,but you need to rest! If you rest, drink fluids etc...you can build up some strength and fight off some of the "bugs" that spread like wildfire on a college campus.

I know this not your style, but maybe a few days in hospital to get your lungs working well, some IV antibiotics, sleep, nurses to use soft restraints when you try to sneak out, might be good-get your health squared away now so you will have more healthy days later.

BTW, what were you doing at work with a fever and vomiting? See Glider, we have these things called Sick Days, to be used especially when your puking your guts out! On the plus side, you are able to run a fever which means your body is fighting the infection. Many CVID or Auto Immune folks like myself have super low body temps and I can't run a fever to help fight infection. Wheb I feel sick, I have to wrap up in blankest and put heating pads all around me...still can't run a temp higher than 97

Anyway,
Go
To
Bed

:) LuLu

Sorry glider, I know I have been hesitant in the past to take the ivig when I am ill, but I actually feel better after the treatment. It will help give you a defense against viruses. I don't know if you are still in the hospital for your training, but if you are you need to have the most defense that you can. Have you ever had iv vitamin c? Please try to take care of yourself and allow your body time to heal.

when i am sick my igg helps me get over things quicker i always do my igg when i am sick...it stands to reason it gives us the stuff our body needs to fight off infection and viruses so infusing while sick seems to make sense....i do iv not sure if that makes a difference...

I have been battling a really bad GI infection of some kind for the last couple of months. I was on a long course of antibiotics recently and I'm pretty sure that is the genisus of my problem. I am thinking that it could be clostridium difficile. At any rate, that's not the point. In reference to the conversation, last week following my infusion I became MUCH sicker immediately after my infusion. I slept for 18 hours, my sleep only interrupted by miserable trips to the bathroom. Within 2 days I regained my feeble health but now I know I can't avoid getting serious now and getting in to see my doctor for treatment.

My point is that I am certain that my infusion aggravated my condition and things got dramatically worse as a result. Although I stabilized within 24-48 hours I probably should have gone to the ER. Now I am worried that the same thing will happen next week, so at least I have a pretty good incentive to get to the doctor.

This is not the first time that I have become sicker following my infusion when I have been ill prior to infusing. I have no idea why this happens, God knows I have thought about it enough. Every doctor I have ever discussed this with have all said that it is likely 'just a coincidence' and there is not a connection. This seems ridiculous to me. Nonetheless, there is physical proof so it is just a 'hunch'. I wish I had some good advice for you, but I can't even figure out what to do myself. I can only tell you that you are not crazy or imagining things. There are plenty of us out here that have the same problems. I think that my goal at this point is to continue to research and to try to find a doctor that believes in the connection and will become an advocate. Please continue to post and let us know what happens after your upcoming infusions.

Woops. 3rd paragraph, "there is NO physical proof..."

I have never been sick prior to an Infusion...how would IVIG/SubQ make you worse instead of better? The new batch of antibodies would not help fight infection?

Fezzywig, if you think you have C-Diff, Please get tested sooner rather than later. I had C-Diff for a little over a year and it is horrible, Antibiotics plus a weakened a immune system is like the perfect storm for C-Diff.
If you do get tested and you test positive, most likely your Dr is going to want to put you on a med called Flagyl first-with our Immune Systems Flagyl is like sugar pills.

Ask to skip right to Vancomyccin (sp?) and also make sure to ask your DR if you can follow your course of Vanco with a round or 2 of a new med called Dificid.

Dificid is not the best at killing C-Diff Toxins, and it is meant to be taken as a follow up treatment. The purpose of Dificid is to prevent relapse. It was just FDA approved about 4 years ago so your Dr may not know about it, so bring research. It is the only thing that really worked for me.

There is another alternative that is really gross, but super successful and people get better in about 3 days-used in Europe for about 10 years if the first round of antibiotics don't work. Just now becoming popular in the US b/c of the cost of the meds and to prevent "super Bugs"

It is the Stool Transplant....I'll leave it at that for now, since you haven't even been tested yet and it's kinda near dinner time, but if you need info, let me know

Feel Better, LuLu

Lulu, for me it is not that the infusions make me "worse" I just react very badly when I infuse ill. In the long run there are still positive outcomes, but when your body is already very sick and weak and you do an infusion you may not have a good tolerance for treatment. Then it becomes difficult to recover from each infusion before it's time for the next dose. Fun little cycle!! That's all I mean!

Thanks for explaining..so it takes a lot for your body to deal with donor antibodies and being sick wears you out even more than when healthy?

regardless, it does not sound like fun.

Glider, take care of your health
:) LuLu

Thanks LuLu. Glider got it right. It's not the infusion itself that makes me sick, it's being sick before getting infused that seems to be the problem. I agree, it would seem to make sense that getting the infusion would make you better and I do believe that it can, but it must have something to do with the wallop packed with the entire infusion hitting at once... just too much for a weakened condition.

I have had C,Difficile before and know it's a bitch. I need to just buck it up and get into the doctor and start the whole process. The testing thing makes me ill just to think about. btw, I know about the 'transplant' thing. Just recently my sister inlaw started looking into it for her sister. Her sister has ulcerative colitis and apparently patients have had success using the transplant. If this is true and it actually works it's huge. She has suffered and I mean SUFFERED, for years. The only thing that has really helped her has been diet control. The poor thing has to be so careful about everything she eats it's pitiful. A successful transplant could be truly life changing.

In the meantime, I just need to get into the doctor's office. I have been on Flagyl before but have not heard of Vanco or Difficid. Great information, thanks. I will pass this along to my doctor and possibly save some valuable time.

Thanks for your help.

Not many Docs have heard of Dificid, so go armed with info...it is a new drug and has a high success rate of preventing relapse.

Some Dr's hesitate to RX Vanco b/c they are afraid C-Diff will become immune to it. That's not your problem right now. Vanco is much better than Flagyl, but if Flagyl works for you it works for you, but if you need multiple courses of Flagyl ask for Vanco

Best, LuLu