Common Variable Immunodeficiency Support Group

Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.

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/ Common Variable Immunodeficiency Support Group

Stomach upset

Arleen123
Arleen123
Sorry about all the posts and questions I'm not really settled with a Dr yet and just found out I have some weird low immunity test results.

I strongly suspect these terrible stomach woes are related somehow. I'm having fits trying to take any medicines. Even eating is sometimes hard.
All OTc stuff is useless at this point

Any stomach meds found to be helpful???? Also, is anyone taking liquid vitamins because of this? Any brands to suggest?

I posted my test results on another thread.

Many thanks !
gliderlove
gliderlove
It would really depend on what exactly is going on with your stomach. Various GI disorders, or GI upset in general is common with CVID. I would put a call in to your doctor and ask for recommendations as to what would be safe to take for your symptoms. It may be good to consult with a gastroenterologist so they can assess what is going on and the right way to address it. Avoid fatty, greasy, or heavy substances as those can be extra upsetting, and try to drink plenty of water, tea, and Gatorade as they are easy to keep down and it's important to be hydrated. Sorry you aren't feeling well.
Jcormier
Jcormier
All of my troubles began with stomach/gi issues which lead to learning about my low IGG/IGA numbers. I'm still mid vaccine challenge so can't confirm CVID but can suggest a Probiotic for gastro issues. Sometimes it helps sometimes it doesn't but either way on the inside it's supposed to be good :) I had to go for a endo and colonoscopy, allergy testing and tons of blood work.
Good luck!
MissSophie
MissSophie
Find a good GI doctor along with a good doctor to handle your immune problem, wether that is a immuno doctor, hematologist, or rheumatologist...What ever works for you...

Ask him/her what they suggest..I know I couldn't take otc vitamins..Like glider suggests avoid fatty, greasy foods, coffee can upset you stomach too..
Foods that calm, pureed sweet potatoes, real mashed potatoes (no milk & butter) use non fat greek yogurt instead.. Non fat greek yogurt, no fruit, add a little fresh fruit or honey & stir..White bread..Scrambled egg (use cooking spray in pan, add water to egg instead of milk)

You can drink Ensure Clear, not reg Ensure they have a lot of fat & upset my stomach...

But First call your doctor..Stay hydrated, small sips of Gatorade or ice chips do wonders..

Feel better soon..
SeaSprite
SeaSprite
Hi, I'm new. I have deficient IgA, waiting on tests for CVID.

I have severe nausea a great deal of the time. My doctor gave me Ondansetron. It works pretty well but it makes me really sleepy. I usually nap after I take it. Since my stomach and my head hurt a lot as well, when things get really bad sleep napping is welcome.
brokenwoman09
brokenwoman09
I too had and still.have very serious GI issues. One bit of advice I can offer is to not resort to antacids or proton pump inhibitors like prevacid, nexium and the like. These drugs inhibit your gut's ability to absorb B12 which leads to anemia and pretty soon you're already so screwed up physically that you're in the dreaded "cascade effect" and no one can or worse WANTS to help you. Tread carefully. Before my diagnosis I had refractory vomiting and lost over 65lbs. Even went to Mayo. BC I was sent there (and left with NOTHING) it gives other MDs an out--as in "oh if Mayo couldn't help you, how could I?" So do everything you can with your local MDs. Sorry I wandered.