@ tina it is that time of year that the germs flow!!!!!!!!!!!!!!!!!!!! YUCK!

Sorry tina, it's that time of year. Just try to rest and keep as well hydrated as possible. It takes alot longer for us to bounce back from a virus. Hang in there.

It is a bitter blow indeed. Our 'bounceback' capabilities are just not up to par compared to everyone else Hopefully, your husband understands and that and he will give you the support you need. It can be utterly depressing but, it just is. Keep in mind that you are not alone, and if you need support this is a great place to come.

Hope you feel better soon.

So sorry. :-(. I know what you mean, it's so hard to see someone get over a sickness that takes us weeks. You take care and hang in there!

Thanks guys. I think I am wondering at this point how much the IVIG treatments are helping me. My husband, who is very supportive, and i sat down last night, and we discussed the pros and cons, as we have experienced them while I've been on the treatment (31 g Gamunex every 4 weeks).
Pro: less sinus issues
less allergic reactions
first week i have a lot more energy
less headaches

Con: joint pain that has gotten worse since taking the gamunex
swollen lymph gland in neck that wont leave
lump on arm (calcium deposit??)
(the 2 above both appeared this month)
seem to be more sickly feeling these last 2 months
the 2 weeks prior to treatment I am getting more and more tired

When i look at it like this, it doesn't seem too bad, but there is a feeling in that me that is telling me to try something different. I think that even though I am so needle-phobic, I should try sub-cutaneous treatments. A regular influx may be what i need.

Has anyone had any experience with naturopathy regarding this condition? There is one woman in town who is recommended, and seems to be regarded as not being a "quack." I hesitate to try right now, as I want to know what my body's reaction will be to a slightly different treatment. I would love any info about that area of the medical world, as I know nothing.

Let me know what you guys think,about my little list. I appreciate the input and advice I've gotten from here, and value what you all have to say.

Thanks

right now the only known treatment is igg replacement...although eating right and exercising wouldnt hurt there is no magic fix ..... my doc once said if i lost my leg no amount of good eating and natural remedies would grow my leg back....we have a messed up immune system...we cant "grow" back something we dont have....

if you are getting that 4th wk zap try going to every 3 wks also depending on your weight 31g might be a low dose...i have found many docs under treat when dealing with igg replacement....your dose should be calualated based on your weight ...then as time goes by your dose should be adjusted to keep you at your best.....going to sub q may be ideal for you...for me i am needle phobic...i have a port which has made my infusions so much more pleasant.....if that word can even be used when talking about a needle based treatment!

You should talk to your immunologist about doing your infusions every three weeks instead, I found that is really helping me. I'm tired a little less frequently and another thought is maybe you need a different brand of ivig with a more aggressive per-med regimen for a little while. Do you have a rheumatologist that you see for the joint pain? I know that's no fun, my joints ruin my days more than being sick does sometimes. Big hugs!! I hope something works!

I really appreciate the comments; I am seeing my immunologist in December, and will ask him at that point if we can switch to subq treatments. I just hope I don't faint while I do it:)
I am a person that enjoys healthy food and an active lifestyle (fencing!), but the joint pain has made it a bit hard to fence as effectively as I did even a few months ago. I plan to buy new footwear and see if that makes a difference with my leg issues.
My worst fear is that my children might have it too. My son seems to have an average immune system, but my daughter seems to get sick easily and stay sick longer. I hope that's just me looking for something that isn't there. I haven't said anything to her about it; my plan is to wait and see how things progress through the school year.

@ tina my daughter has cvid also....not what i would have wanted to pass along to her...but she does ok...she is now in her 3rd yr of pharm school was on a full track and cycling scholarship undergrad so it isnt the end of the world if she has it.....but it isnt common to pass it along....my family is of the odd ones we seem to be plagued with auto immune and immune issues....my mom has RA, aunt has lupus, dad gout brother (now deceased) had gout mt daughter has cvid and my cousin has cvid i have cvid and sjogren's ....but for many it is an isolated event....also ask about your dose and make sure it is weight appropiate....godd luck dont think i could EVER do sub q thankfully i do well with ivig!