
Common Variable Immunodeficiency Support Group
Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.
No change at the moment . Just freezing as my temp has dropped below normal at 95.0
This last infusion was not good . Side effects continued a couple more days after I posted this and I have talked to the nurse . I will update again after my next infusion . Thanks everyone for your replies .
I was changed to another brand , also had reactions . Pre meds have been started with Tylenol , benedryl iv and corticosteroid iv the day of treatment .
I followed it up with oral benedryl .
The day of treatment went much better and the side effects this time have been much more tolerable . Maybe some more tweaking to do , but this was much better than the previous two infusions . We will get there.
My 0verall health :
Apart from the side effects this has really been a lifesaver for me . I am very pleased with the results and benefits of Ivig and am so grateful . It has changed my life for the better .
Be patient to those who are starting that have side effects .. work closely with your doctors . They are great .