I'm new here and haven't been officially diagnosed with CVID, but am currently seeing immunologists to figure out what's going on. I have a few questions but first, I'll tell you a bit about myself (and my wonderfully bright medical history, ha). Bare with me;)

 

I'm a 32 year old female and I take pretty good care of myself and my body. Despite this, however, I get sick incredibly often and have for much of my life. I've always had recurrent infections of the ears, nose and lungs-- sometimes severe-- and have spent my fair share of time in the hospital. I've also had random problems such as Pelvic Inflammatory disease, ruptured ovarian cysts, kidney stones and mono that lasted for months and resulted in hospitalization. I've always had that gut feeling that something just "isn't right," but recently, it's gotten much worse-- in both frequency and severity. In the past year alone I have had asthmatic bronchitis twice, multiple upper respiratory infections and  sinus infections,  multiple ear infections, have been hospitalized for pneumonia and a few months later, hospitalized for a terrible intestinal infection. (The infection turned out to be giardia). On top of this, I have random bouts of nausea and diarrhea pretty frequently, I've had several yeast infections, strange itchy rashes on my face and underarms, chronic canker sores and daily headaches. I'm nearly always exhausted and even the strongest antibiotics can't seem to keep any of this at bay for long. Basically, as you can probably all relate: I'm sick and tired of being sick and tired!

 

After my recent hospital stay for giardia, in which I was hospitalized for over a week, they discovered that I had an extremely enlarged spleen, a very high white blood cell count and a few other "abnormalities". (I should mention that I live in Taiwan and can't speak Chinese fluently, so much is lost in translation). They ran several tests and eventually sent me to an immunologist. The doctor thought I had selective IgA deficiency but as it turns out, my IgA levels are normal. On the low-end of normal, but still normal. I'm going back in a week to get a slew of other tests (IgG, IgM, etc) but the doctor said several times that she thinks I have CVID. Naturally, after reading about it, I feel a tad worried but also a little confused. Maybe someone on this forum can clarify a few things for me? The language barrier here makes getting a full picture of what's happening near impossible, and WebMD sometimes isn't as useful as speaking to someone with actual experience. 

 

Is it possible to have CVID with  normal IgA levels? Everything I've read says that CVID almost always occurs with low IgA and possibly low levels of other immunoglobulins, but I haven't read anything about  it occurring with normal IgA levels. 

 

If you have low IgG or IgM, is this still CVID or some other kind of deficiency?

 

Is there any other PID that could be causing all these infections? 

 

If you're still here, thank you for reading and sharing your time. You're all amazingly strong, by the way-- I've learned so much from reading your posts :)