Common Variable Immunodeficiency Support Group
Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.
My name is Becky and I have been diagnosed with CVID for a little over a year now. I infuse Hizentra subcutaneously every other week. My question is out of curiousity. What size needles do you use if you are infusing subcutaneously? I have found that I "leak" every so often; especially if I get up and move around. Usually, this is my quiet time to sit and watch a movie or read a book but I would like to get up once in awhile to do something but I am always afraid that I will start "leaking". Thanks for your help!
I infuse weekly with Hizenta. I use 9mm/3 site needles for 12 grms- weekly.
The needle size is usually determined by your weight. I weigh between 115-120 and infuse on my hips/ lower backside.
If you are leaking you may need larger needles (12mm) or are infusing in an area that there is not enough fat. You want to infuse in fatty not muscular areas.
You may also try adding another needle site so there is not as much product going in each site. I am guessing since you infuse bi-weekly you are infusing twice the amount as you would weekly. Infusing weekly is another option.
The good news with Hizentra, it is 20% vs. all other products are 10%.
I have leaked in one site twice and just clamp off that site and avoid that area.
I hope that helps.
Denise