Common Variable Immunodeficiency Support Group

Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.

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markincleveland 12/31/2010

Has anyone else received a letter in your "my messages" about a study - $75 for a one hour market research session?
Did anyone else sign up?

stimpy 12/31/2010

Yes Mark I did. I am definitely going to do it. But this time I am going to keep my big yap shut. LOL. Thanks for reminding me, I have to make the call.

kelli1b 12/31/2010

Yep I did too, think I'm going to participate.

CountYourBlessings 01/01/2011

Does anyone know who is funding the study? I'm still debating. Just want to ensure the results are used properly.

markincleveland 01/01/2011

You'll never find out who is funding the study, it is market research. If you have any concerns you shouldn't participate.

My experience is they are not looking for any individually identifiable information in these studies.

I believe the results are only going to be used for some company to earn more money . . is that what you mean by being used properly? Why else would they be spending the money for the study and paying use $75 for our time?

kelli1b 01/05/2011

So I've called twice and emailed twice and cannot get them to call me back. How weird, and rude, to reach out to me then NOT return my calls and emails? Unprofessional.

stimpy 01/07/2011

I am going to do the phone interview. Who else is scheduled to do it?

kelli1b 01/07/2011

They actually called me back and I did it yesterday Stimpy.

deleted_user 01/07/2011

i did not get anything.....

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