Hi Kookiecat,
I do subq and also have nausea. My doctor said it isn't very common, but it does happen.

I did not premedicate my first infusion and I was nauseous for a couple of days after, so my doctor gave me 4 mg of Zofran to premedicate with. This helped, but I was still nauseous so he increased it to 8 mg. I now premedicate with 8 mg of Zofran an hour before I start my infusion and I seldom have nausea or if I do, it is mild.

If I still get nauseated, I use Preggie Pops and they help tremendously. I'll admit, it's kind of embarrassing to have to go buy them and get congratulated every time, but it's worth it. They sell them at Babies R Us and at natural foods stores. Ginger ale made with real ginger also helps and salty snacks like saltines and pretzels help.

I have been infusing for a year on October 14th and I have found that the side effects lessen over time. Your doctor can also try changing your flow rate tubing so your infusion will be slower and that should lessen the nausea and side effects. There are several different things your doctor can try before deciding to stop your infusions.

Sending love and hugs to you. I know it's miserable.

Ashlee

Thank you Ashlee.

Have you noticed your infusions going faster than before? Its possible they changed the flow rate tubing without you being aware. If thats not the case, you can try slowing the infusion down by asking for a slower flow rate tubing (the short tube that connects the syringe to the needle sets). Most people start with an F275. The lower the number the slower it will go. Additionally, you could talk to your doc about premedicating withe benadryl and a nausea med? Remember were not doctor but a lot of people premedicate. If it were me, I'd slow down the infusion first vs adding extra meds. Its easy and shouldn't cost a dime. Good luck

I've tried everything. I slowed the infusion rate down. I premeditated. I post medicated. I am going to switch to hizentra and see if that makes a difference. Such a bummer

How long does it take once you start the pump? What size is your flow rate tubing? what is your dose?

I've tried using the 275 then 180 gauge. It takes either an hour or two depending on the gauge. I didn't notice any difference. I don't get sick during the infusion but either the next day or two days later.
After talking to my doctor yesterday we decided to change to Hizentra.
I hope I'll have better luck.
But I know gammagard has a long half life.