I have noticed a lot lately that this condition literally consumes my life. Though I may not be the one starting the conversation....it somehow manages to come up. I have needed more favors from friends lately, even if it's just a pet sitter to travel for a consult. I have had a relatively good month in comparison to the start of this year. I always struggle with symptoms. I am extra sick right now and waiting to hear back on my imaging results so I will know if I have to go in for IVs or if I can do a few rounds of oral antibiotics for the infection. Anyways, I would like to think I keep a relatively good outlook on all of this, and continue on with my life regardless of the extra struggles, but it gives me a bit of a sad heart to feel as if this little monster is part of EVERYTHING. I almost thought about taking a break from FB and the forums because I just can't read about it constantly...but then I think the connection can be good. How do you avoid feeling consumed, or avoid this being a part of conversations? I think it is important for others to understand that I have limits and will tire more easily, but CVID being a topic of conversation doesn't accomplish anything, it actually makes me a bit sad because I get enough of it personally. Is this a relatable struggle? Hope you guys are having a good start to your week!
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