Wow I'm so sorry that you've been so sick for so long but that's awfully young to be dx'd (diagnosed) with it. Everything about CVID states that a dx (diagnosis)should not be made until at least age 4 because the immune system is still developing during that period. While I know people can have it since birth and I think I was born with it I wonder if they've ignored other illnesses just thinking this is all that you have.
Have you been retested since age 2. I think you have to go off IgG for about 5 months before retesting. Feel free to respond. I don't know if I can help but just something that I wanted to point out regarding getting such an early diagnosis.

It did take time for them to find a diagnosis and yeah I was diagnose early at Children's Hospital of Los Angeles. They have so many good doctors there especially Specialist. They thought I had to be in a bubble because at first they thought I had no immune system. They ran a lot of test and even tested my parents for a possible bone marrow transplant. I was a sick baby from what my mom was telling me. I got reoccurring infections to the point that the doctor told my mom that I needed to see a specialist and that's when I ended up at Children's Hospital in LA. The CVID that I have is rare because I have a Rag 1 defect. I had so many tests done and CVID has not change. I been off infusions before and it was not good. I had a cold I couldn't get rid of and just reoccurring bronchitis, skin and bacteria and yeast infections etc.... I stay in and out the hospital. I recently just got out the hospital because my blood cells (red and white) and platelets dropped extremely low out of nowhere. I almost passed out and the doctors can not explain why that happen. Tylenol didn't break my fever and they just gave me antibiotics. They wanted me to get a blood transfusion which I refused because I'm scared my body may reject it and make me worse. But out of nowhere my blood count goes from 6.1 to 7.4. CVID is sooo mysterious and you just never know. I just got my infusion today (40mg of Privigen). My doctors have been talking to the National Institution of Health in Maryland for advice on me. They got plans on sending me out there. This condition is really breaking me down. When I was ten, I had cryptococcal meningitis around my brain and the doctor told my mom if she would have waited one more day that it was a possibility that I would not have been here today. I been through sooo much and it's still going on. Thanks for replying too, I appreciate it because we need support with this CVID stuff.

Yes, you do need support! I hope you are finding some level of it in your life. I can't really imagine what it must be like to have lived with this your entire life. Though I was often sick as a child (not even close to what you've dealt with, however), I was only recently (10 years ago) diagnosed with CVID. I am at the other end of life from you, though. The thing that helps me the most is paying attention to the good things in my life, however small. I wish you the kindness, love and understanding of others and one or more listening ears.

Ahhhhh, you are in LA? We are treated at Stanford. My daughter was diagnosed at 3, started treatment at 8 years old. She also started with many "normal" CVID issues and has now progressed to autoimmune and just got a diagnosis of RAG2 mutation. We are now in the process of looking into gene therapy and having open minds to treatments. IVIG monthly is not keeping her healthy for more then 2 weeks.