Common Variable Immunodeficiency Support Group
Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.
I am new to CVID and have had 4 infusions since the diagnosis.I have had some episodes and would like to know (no holes barred) whether or not it's normal to have these symptoms. I feel somewhat better, but some days, a few at a time, I suddenly get what feels like a relapse. I MIGHT GET THE EXTREME FATIGUE OR FUZZINESS AND REALLY SEVERE JOINT PAIN. At other times, I get diarrhea ( because I have stomach issues due to the disease).I 'm again in and fuzzy and shaky place.- I'm trembling and knocking things over and have no memory in both cases. Please tell me "does this happen to some or is it abnormal despite the differences in the course of our illness?
I respect this support group more than I trust anyone, including my doctors. Thank you so much.
I respect this support group more than I trust anyone, including my doctors. Thank you so much.
There is no "relapse" with CVID. Treatment does not cure us. Treatment is meant to significantly reduce the frequency and severity of infections over time.
CVID can come with a host of things: arthritis (some are helped by infusions and some are not), gut issues (some are helped by treatment and some are not), autoimmune disease is very common with us. If you already have stomach issues, then having diarrhea would seem par for the course in my opinion. The shakiness and knocking things over you should talk to your physician about. Its important to remember, not everything that happens with our body is because of CVID. Good luck