I can't believe i found this site. I never knew exactly what i had until i found info on the internet about 10 years ago. I've suffered with cluster headaches since the age of 13/14 puberty). I would have attacks over a 1 to 2 month period, then 9 months or more would go by and i would get them again. About age 40 my doc prescribed ZOMIG. For me this was like heave. THis medication works if taken prior to the attack. I have notice that if taken too late the pain was not as intense. About a 50% reduction. Drossiness and fatigue are the only downside to this drug.

I am now 50 and have not had an attack for 6+ years and I thought i was through with them since my doctor told me as that i get older the less frequent the attacks. Last month i had an attack and this time it occurred on the OTHER SIDE of my head. I heard this conditon is extremely rare so I have set up an appointment with a neurologist in 2 weeks to discuss the matter. My primary doc is not that knowledgeable on the subject and suggested i go see a specialist. Not sure of the outcome but i will share with the group next month.

A couple of things about me is that I snore and have sleep apnea. I use the CPAP machine over the last two years and it works great. I read that people with sleeping conditions are more prone to cluster headaches. In addition, i have poor eye vision, a slight form of crosseye or lazy eye. I thought that this was often the casue of my headaches since when i first wore glasses in college the headaches almost immediately went away. However, a year or so later they return.