Cirrhosis Support Group
Cirrhosis is a consequence of chronic liver disease, most commonly caused by alcoholism and hepatitis C. Ascites is the most common complication of cirrhosis and is associated with a poor quality of life, increased risk of infections, and a poor long term outcome. Liver damage from cirrhosis cannot be reversed, but treatment can stop or delay further progression and...
I knew that I was drinking to much, but always expected there would be some sort of warning sign where I knew it was time to cut back or stop. Never happened.
Literally overnight I became jaundiced, ascites started and a month later I nearly bled to death from varices and spent nearly two weeks in the hospital.
He's gambling with his life, especially since he's already had symptoms.
This disease may take years to develop, but it's like approaching the edge of a cliff, you may feel great but that final step pushes your body a bit to far and suddenly everything starts to fail.
I'm one of the lucky ones and have so far recovered (stopped drinking immediately but it was to late), but many people don't get that second chance.
If your insurance and doctor approve it, an abdominal MRI is a good test to see how things are inside. It has been 5 1/2 years for me and I still get one every six months just to see how things are going.
Do I correctly understand that he's (A) previously had varices, (B) is currently drinking ..(C) has good health insurance coverage, and yet (D) refuses to have any imaging done? All of the above? Because if so, then I can easily answer YOUR question for you:
With all concern and respect, something is very, very wrong with this picture.
I assure you that a person can have cirrhosis with perfectly normal AST and ALT....and absolutely no symptoms whatsoever. More often than not the symptoms will not appear until it's fairly advanced and his liver is nearly destroyed. He apparently thinks that 'ignorance is bliss' - but be not deceived, I beg of you. This man is 'playing with fire.' Very foolish and very unfair - to himself and especially to you. I hope that you will INSIST on an MRI (ultrasound often misses cirrhosis) or a CT scan. And I mean immediately. Please do this - and pls keep us posted - -
I nearly had my gallbladder removed because of a faulty ultrasound. It "looked" like it was blocked and not working properly. Thankfully they did and MRI and found out it was nothing, otherwise I'd be missing a pretty vital part of my body. This was when I was originally hospitalized, my GI doctor hadn't been officially assigned to me yet.
My doctor used to use ultrasound tests as a quickie view to see if anything was wrong, followed up by MRIs if something was questionable. He no longer does ultrasound because of its' unreliability.
If he does eventually need a transplant, he's got to prove six months of sobriety as you mentioned. Just attending AA meetings while still drinking doesn't count, it will still show up in his blood tests.
As for the $25,000, the true cost of a transplant is more in the $500,000 range.
He needs to stop drinking and hopefully his liver isn't to far gone so it can begin the healing process on it's own. It may take years, but it's well worth the effort. No alcohol, healthy diet and exercise, and you'd be surprised what the body can to do recover.
Perhaps most significant: if he stops now and gets help then he could quite possibly be able to avoid any need for transplant!!
Good luck and God bless!
Again, I will comment on what a wonderful wife you are! Someone mentioned eariler that ignorance is bliss. And you know something? I really think it is! An ultrasound is the 1st line of imaging and only takes about 20 minutes. In my case, mine showed nothing. CT scan showed nothing MRI series showed nothing. But the biopsy showed EVERYTHING. And...now I know what I have to look forward to.
The thing about it is, now that I know, a drink does not sound appealing anymore. It is not even tempting. And now that my protein metabolism is all sorts of messed up...a steak simply doesn't seem worth it.
All you can do is encourage him. He is probably afraid. Even though lifestyle changes are totally beneficial and help people feel good...no one is really excited about initiating it. Keep encouraging him, it looks as though you are doing a great job of that. Maybe he could repay the favor and get an ultrasound, if not for himself, for you.
Best of luck!
Tess
I was also lucky. Went for years with no symptoms, no problems, never had hepatitis. I was what I now know is called a "functioning alcoholic". No problems with my job, never had a DUI, everything was great.
But within the course of about a month things changed drastically. First the jaundice then water weight gain from ascites. My doctor sent me for a paracentesis and I stopped drinking immediately.
A month later I had bleeding varices and off the scale blood sugar levels. Spent almost two weeks in the hospital, four days in a coma and wasn't even expected to come out of the hospital alive.
As I posted earlier, everything was fine, but I took that final step off the cliff and nearly died. He's living on borrowed time and eventually it catches up. Might be months, maybe even years, but it's the type of behavior that always ends badly. Having already had a variceal bleed, it will only get worse.
I hope things change before it's to late.