Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
Sooooooo....
Have agreed with immunologist to start treatment of possible Lupas or almost certain of those immuno dx's.........
If this fails to bring about improvement....
Or.....if I start to loose weight again.....
And....I can get strong enough to cross a room without worrying about fall in.....let alone half a country.......
I will be going to Hopkins or Mayo......
I'm VERY aware of how difficult the status quo is for my DH....
He actually asked my doc today.....'so, if I have to carry her unconscious into the hospital.....will it be too late? '............my heart aches for him....I'm not just being stubborn........I hate to see him worrying so......I do have a multitude of good reasons for trying to do this from home....which are a multitude of other posts I'm not up to.
Unfortunately....Prednisone is the first line of defense.
Prednisone makes me...um, 'irritable'......
Or downright crazy-mad......
But.....it's gotta be, so....
Sorry the post is soooo long and back to back with my other.....
But I'm trying to be clear for a change....I've been told I'm 'vague about my health issues.
Thank you all so much for caring so much......
I can't tell you what that means to me...
Hugs.....jc
Have agreed with immunologist to start treatment of possible Lupas or almost certain of those immuno dx's.........
If this fails to bring about improvement....
Or.....if I start to loose weight again.....
And....I can get strong enough to cross a room without worrying about fall in.....let alone half a country.......
I will be going to Hopkins or Mayo......
I'm VERY aware of how difficult the status quo is for my DH....
He actually asked my doc today.....'so, if I have to carry her unconscious into the hospital.....will it be too late? '............my heart aches for him....I'm not just being stubborn........I hate to see him worrying so......I do have a multitude of good reasons for trying to do this from home....which are a multitude of other posts I'm not up to.
Unfortunately....Prednisone is the first line of defense.
Prednisone makes me...um, 'irritable'......
Or downright crazy-mad......
But.....it's gotta be, so....
Sorry the post is soooo long and back to back with my other.....
But I'm trying to be clear for a change....I've been told I'm 'vague about my health issues.
Thank you all so much for caring so much......
I can't tell you what that means to me...
Hugs.....jc
Prednisone is the first line defense for lupus but there are a number of better drugs out there. Benlysta is the newest drug and I've read that it's a miracle drug. Fortunately, my lupus is in remission right now so I hope to get off prednisone without any lupus complications.
Good luck and I hope the prednisone helps!
Sandy:)
My Doc did say that there were 'less aggrssive' steroids that could be used if this shows to be affectve........he's not even tytrating up.....he said he ants to hit it high and hard so as to more quickly and better dscern it's effectiveness.
You guys....it is really strange to me to be talking seriously about my stuff.....I'm better at listening to yours, or just joking around.....
Thank you for bearing with me......it's hard to communicate well about this for some reason.
Thanks again, Sandy.....and all....
Hugs....jc
Roid rage is no fun but if it gets you better that is good. The last time I had it I swore never again but I will if I have to. We are here and don't you forget it.
Sending all the hope to you JC
hippy
Hopes the prednisone helps, I am back on 35mg a day @ the moment to try n bring things under control again... Starting Imuran as well yaaay... Please go to the Mayo... man... I have even heard of the amazing work they do n I live in Aus.... Nothing but great reports...
LOL, "crazy-mad" sounds interesting... he he,
Just hope it starts to work my friend n you start to feel better.... n please stop sedating your coffee and pockets.... with your patches...
Be good n thinking of you... 8-)
,
I hope your prednisone treatment helps. Fingers crossed for you dear.
when do you start? we love you as you are and all want you to get some relief.
One good thing about prednisone is that it increases appetite. Most people hate that, but...
And my dear friend, you are a great listener, but we can listen too. Talk away!
Love 'ya hugs,
Theresa
Sometimes we just have to talk serious and I hope this works for you and the side effects are limited. I had to take steroids once and I was a bear to live with but it had to be done so in the end I could get better. Keep your eye on the prize.
I like the serious side too, and it helps to write it down and others know some back ground it makes you more endearing.
I hope this med works for you and you don't kill any one teehee!
I just never had that kind of a reaction on it. Meds hit me weird though.
Hugs to you DS sista,
Toni
Good luck with everything. I hope the pred helps. I hope that find out even more info soon!!
Gentle hugs,
Jenna
My hubby had me write down...
I love him.
He loves me.
He does not have a girlfriend.
There is nothing wrong.
Evidently these are issues from the last prednisone ride......:-) :-) :-) :-)
He and daughter have both been by to ask "are you crazy yet".........
Well....THAT could drive ya nuts pretty quick :-) :-) :-)
Hugs.....jc..
xo pauli
and just maybe it will be mostly good. ;-)
I laughed at the stuff your h had you write.
I understand though.
hugs!!