Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
ATOWifeofJason
I have a very, very high pain tolerance. After knee surgery, a hysterectomy and a fractured ankle in the past few years...I took the lowest dose of hydrocodone while in the hospital and nothing after besides Advil.
I take at least 400mg a day and up to 1200mg of Advil (1200mg is the highest dose-unless advised by a dr then 3200mg is the max). I also use Voltaren Gel. I had a dr prescribe hydros and after a few days I had urinary retention. So we switched to tramadol 50mg three times a day and I did that for a couple of months but then stopped. My problem now is I am hurting all the time. Nagging and unrelenting. I do heat and stretching and even massage but nothing is working.
I have had 5 knee surgeries, I have cysts in my spinal column that are encasing nerves. Broken right ankle several years ago and recently fractured my left one November 15, 2013. I have developed poly arthritis and my hematologist/oncologist is constantly testing me for RA and lupus.
How do I approach my doctor because I just can't do this much longer. I guess I am looking for insight about what works for others. Do you supplement with OTC products? Would greater strengths of advil work...does anyone take large amounts with good results?
I guess I'm a little disappointed in myself...and I know it is ridiculous but I hate the idea that I can't control this myself.
I take at least 400mg a day and up to 1200mg of Advil (1200mg is the highest dose-unless advised by a dr then 3200mg is the max). I also use Voltaren Gel. I had a dr prescribe hydros and after a few days I had urinary retention. So we switched to tramadol 50mg three times a day and I did that for a couple of months but then stopped. My problem now is I am hurting all the time. Nagging and unrelenting. I do heat and stretching and even massage but nothing is working.
I have had 5 knee surgeries, I have cysts in my spinal column that are encasing nerves. Broken right ankle several years ago and recently fractured my left one November 15, 2013. I have developed poly arthritis and my hematologist/oncologist is constantly testing me for RA and lupus.
How do I approach my doctor because I just can't do this much longer. I guess I am looking for insight about what works for others. Do you supplement with OTC products? Would greater strengths of advil work...does anyone take large amounts with good results?
I guess I'm a little disappointed in myself...and I know it is ridiculous but I hate the idea that I can't control this myself.
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so just be careful with advil...
First, are you seeing a pain doctor or a primary care doctor? If at all possible where you live, you need to see a pain specialist. A pain doctor is much better trained to help you with the proper medications.
You are taking a large amount of NSAID medication IMO. The side effect profiles of all NSAIDs are very concerning to me and my wife. We both suffer with chronic pain and try to avoid, or limit, NSAIDs if at all possible. IMO, opiate pain medications are less concerning in many ways than NSAIDs. However, opiate pain meds are not effective for pain caused by inflammation based on our experience. So in our case, we are caught between a rock and a hard place. Which is the worse (more dangerous long term) opiates or NSAIDs? There is no good answer that we have found over several years, but probably a mix of both.
I did not see you mention acetaminophen (better known as Tylenol). If you are going to try to stay on OTCs, I would add that medication since it is very effective for pain. Just stay below 3 grams (I think that is the recommended max, maybe 4 grams). Also add any to your total that may be included in other OTC (and Rx) medications. People forgetting to keep track of their total acetaminophen intake per day is one of the reasons for the FDA cracking down in this medication.
Whoever you choose as your doctor, you need to be totally honest about all your pain issues and what you are taking especially ALL OTC medications. I have all my medications, Rx & OTC, on an EXCEL spreadsheet along with other medical history things that always come up. You would surprised how much it helps just to hand your doctor a complete, easy to read, piece of paper with all information that they need. I update it every time I am going to see any doctor.
I wish you the best of luck. However, do not expect a quick answer. It will probably take some trying different combinations of medications to find relief.
If it was me I would never mention a specific medication to a doctor. Tell your story and let the doctor make suggestions first. If you do not like the suggestions, then slip in a comment to see what response you get. Kind of a game sometimes with doctors and pain meds, I do not think they like the patient knowing more than they do. We are lucky, we can give our pain doctor a tough time and we always have fun, but he is unusual (in a good way) IMO.
Pain isn't always a mind-set. I am a redhead and have an incredibly high pain tolerance. I actually had a fractured wrist but didn't know it until years later when a cyst grew because the fracture didn't heal properly. This was while I was still in the Army and doing push-ups daily. I was shocked that my wrist was fractured until the orthopedist showed me the x-ray. Who has a fractured wrist and doesn't know it when they are using it every single day?!?
Sometimes our pain gets worse because the problems have gotten more severe. By the time I started going to get my knees investigated, they were too far gone for any conservative therapies. So don't beat yourself up for having a high pain tolerance...you are obviously in severe pain because there is a lot going on.
My advice is to talk honestly with your medical care team. Tell your doctor your pain is not being managed and it is affecting your quality of life. If they don't want to handle pain management "in house," they can always refer you out to a PM clinic where you can work to get your pain under control...but don't suffer...it's just not worth it...especially if you've done all you could at home.
(((HUGS)))...I hope you are able to get your pain under control soon!
~Michelle