Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
Since I got back from Mexico I've battled severe sunburn and sun poisoning, RSD flares and terrible allergies.
This week I've noticed some odd symptoms. I'm dizzy a lot. Why? That's not the RSD I know. My sinuses are beyond out of control. I mean, I have always had them, but this year it is so bad I can't escape.
I'm not sleeping. That is part RSD, part insomnia, and part of being a parent. I can't sleep well after my DH leaves for work at 3-4am. I'm too busy listening for my son. I can doze off, but everything wakes me up. SO I'm not sleeping WELL if at all. Last night I slept 3 hours, 1 of those was waiting for son to wake up. Night before was 2 hours, mostly as my son's party was Sunday. I had a lot to do to get ready. And it's difficult to sleep as summer comes on just b/c it's so damn sunny, LOL! I prefer grey days or cool days. Not cold, cool.
Today is my son's 3rd Birthday. I got him up, had breakfast and we played all morning. By noon I'm dizzy and my ears are ringing. Granted, I didn't get any caffeine this morning, but this is different.
One of the worst symptoms is that my eyes are swelling shut. If I sleep, and I sleep on my right side, my right eye crusts shut. Same with left if I sleep on THAT side. This has been going on off and on for over a year,
Could all this fatigue and insomnia and dizzy spells just be allergies? Or should I be as worried as I am that something new is in the works? 15 years with RSD- I survived! But all of this at once is really messing me up.
In addition, I have acid reflux, heartburn and increased pain in my leg and knees. I hate being a baby- I don't LIKE to complain. But all this is hitting me at once. I'm terrified I have MS or lupus or the RSD is getting out of control. My eyesight is suddenly shot, too.
Yesterday at my son's party, I almost slipped at Chuck E Cheese carrying bags of stuff in. No reason for it, I just felt dizzy and caught the table. I AM under a lot of stress right now.It could be stress, or maybe I caught an exotic bug in Mexico or Punta Cana?
I see my pain doc this week and hope to run a few things by him, such as how the sleeping meds (lunesta) didn't work AT ALL. Also, how I would sleep better if I could take one extra pill a day. In 15 years I never had to ask.but drug "guidelines" are now being followed although they make NO sense in my case.
I'm just...overwhelmed. My DH is a good guy but even he is sick of all of the things going wrong. He's been through a lot with me. He doesn't GET RSD but he supports me. This is a guy who had his 1st real injury this year at 47- a torn rotator cuff, and he is just going to PT for it, not even taking the naprosyn they told him to take. Other than allergy meds, he won't take pills. So I'm shocked he met and married ME. We couldn't BE more different.
Maybe I just need some sleep? Obviously, my writer's mind is going all over the place. My symptoms COULD be anything, My Mom was diagnosed with bone stem cell cancer in her early 50's, and I'm 43. I often wonder if I'll make it to 59 years 11 months. Our birthdays were a day apart so it's hard NOT to remember every year.
Okay, time to TRY to sleep. Maybe it's THAT simple? I kissed my beautiful boy good night, said Happy Birthday a million times...hope he knows how much I love him.
Sorry to be a downer, just wondering what's going on.
This week I've noticed some odd symptoms. I'm dizzy a lot. Why? That's not the RSD I know. My sinuses are beyond out of control. I mean, I have always had them, but this year it is so bad I can't escape.
I'm not sleeping. That is part RSD, part insomnia, and part of being a parent. I can't sleep well after my DH leaves for work at 3-4am. I'm too busy listening for my son. I can doze off, but everything wakes me up. SO I'm not sleeping WELL if at all. Last night I slept 3 hours, 1 of those was waiting for son to wake up. Night before was 2 hours, mostly as my son's party was Sunday. I had a lot to do to get ready. And it's difficult to sleep as summer comes on just b/c it's so damn sunny, LOL! I prefer grey days or cool days. Not cold, cool.
Today is my son's 3rd Birthday. I got him up, had breakfast and we played all morning. By noon I'm dizzy and my ears are ringing. Granted, I didn't get any caffeine this morning, but this is different.
One of the worst symptoms is that my eyes are swelling shut. If I sleep, and I sleep on my right side, my right eye crusts shut. Same with left if I sleep on THAT side. This has been going on off and on for over a year,
Could all this fatigue and insomnia and dizzy spells just be allergies? Or should I be as worried as I am that something new is in the works? 15 years with RSD- I survived! But all of this at once is really messing me up.
In addition, I have acid reflux, heartburn and increased pain in my leg and knees. I hate being a baby- I don't LIKE to complain. But all this is hitting me at once. I'm terrified I have MS or lupus or the RSD is getting out of control. My eyesight is suddenly shot, too.
Yesterday at my son's party, I almost slipped at Chuck E Cheese carrying bags of stuff in. No reason for it, I just felt dizzy and caught the table. I AM under a lot of stress right now.It could be stress, or maybe I caught an exotic bug in Mexico or Punta Cana?
I see my pain doc this week and hope to run a few things by him, such as how the sleeping meds (lunesta) didn't work AT ALL. Also, how I would sleep better if I could take one extra pill a day. In 15 years I never had to ask.but drug "guidelines" are now being followed although they make NO sense in my case.
I'm just...overwhelmed. My DH is a good guy but even he is sick of all of the things going wrong. He's been through a lot with me. He doesn't GET RSD but he supports me. This is a guy who had his 1st real injury this year at 47- a torn rotator cuff, and he is just going to PT for it, not even taking the naprosyn they told him to take. Other than allergy meds, he won't take pills. So I'm shocked he met and married ME. We couldn't BE more different.
Maybe I just need some sleep? Obviously, my writer's mind is going all over the place. My symptoms COULD be anything, My Mom was diagnosed with bone stem cell cancer in her early 50's, and I'm 43. I often wonder if I'll make it to 59 years 11 months. Our birthdays were a day apart so it's hard NOT to remember every year.
Okay, time to TRY to sleep. Maybe it's THAT simple? I kissed my beautiful boy good night, said Happy Birthday a million times...hope he knows how much I love him.
Sorry to be a downer, just wondering what's going on.
i'm sorry about your mother, but please don't torment yourself with those thoughts if you can avoid it.
hugs!
I'd run it all by my GP, too.
( write it all down, so you don't forget...:-)
Interesting that you thought of MS/Lupas.....because my Immuno doc just said last week......after confirming DX as Lupas.........that he's pretty sure some of what's been assumed to be neuralgia from shingles ( a known factor).... was in fact RSD/CRPS. ( are those the right letters?) ......Anyway.....I've never heard of a correlation between RSD and auttoimmune disorders....so, I'm looking into it, too.
Hope it's just allergies and tiredness.....
Luv n hugs...jc
I'd check with GP......and, if need more, maybe a rhemy..
- flat out - I wrote down my daily meds. He refused to give me anything other than asprin for post op.
my choices were:
1. Let a surgeon chop up my face and let me suffer.
2. Find another ENT.
Guess which I choose?!?! The second one tells me ALLERGIES! Use one of the new over the counter meds that used to be script. If the first does not work, try a different one. If none work, make another appointment and he will run more tests.
One of those OTC worked. I have no more headaches, sleep nearly 6 hours each night, wake able to open my eyes, and no more nausea from headaches.
I'd suggest you try allergy meds for at least 4 weeks then see a doctor.
Difficulty breathing, mucho gas, bloating. Diarrhea for the first half of Saturday. Lovely, huh? Saw my doctor today. He offered me Antivert for the dizziness. I said "Nah. BTW, how long will this virus last? He said "oh, about 2 weeks". Oy vay!
Don't know if we share any symptoms past the dizziness. Could be lack of sleep combined with the stress for you. I hope you don't have this bug. Feel better soon. Hugs, Dianna