Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
Hi, I recently was dx with RSD after having a hip surgery. It first started as a burning pain up the inside of my leg - same leg as the surgery only opposite side - almost the entire leg. I called the surgeon who had me go to get an ultrasound to rule out a blood clot. The ER doc just chalked it up to a musculoskeletal problem but my physical therapist said no this is nerve related. The trouble with me is I have fibromyalgia and I have pain in my legs all the time so squeezing one leg is no different than the other - they both hurt like crazy. The only difference is the one still has the burning surface nerve pain. Maybe that just means I haven't advanced to the next stage?
I've heard it is possible to stop RSD from getting worse. Has anyone had that experience?
What medications/treatments etc. have helped you along the way?
Is there a specific support group for people with RSD here within chronic pain?
Thanks, in advance for your help!
I've heard it is possible to stop RSD from getting worse. Has anyone had that experience?
What medications/treatments etc. have helped you along the way?
Is there a specific support group for people with RSD here within chronic pain?
Thanks, in advance for your help!
Fingers crossed for you dear.
My name is Carrie and I want to first tell you how sorry I am that you are experiencing any type of pain as it is not very fun. I was diagnosed with RSD back in 1994. It took a year of being persistent with several doctors, however, I finally got a diagnosis. I had treatments done back then that helped my RSD and it has been manageable ever since.
There is an RSD Support Group here. Just go to the top of the screen and click on "Support Groups", then select from the drop down box "Reflex Sympathetic Dystrophy". I don't think it is a very active group but you might want to check it out.
While you are there, I invite you to check out a recent post I shared titled "THERE IS HOPE" (it is still on the first page) I shared my story including what helped my symptoms tremendously. Of course, keep in mind that everyone is different so someone else might not have the same outcome.
Since you were recently diagnosed, I think that your chances are good at getting some help with the symptoms, however, I would not wait whatsoever. Like keeska said, make sure you stay on top of your doctor to get some fast treatment.
Good luck to you and please let us know how you are doing.
Hugs,
Carrie
What medication do they have you on for it?
here is the link . . hope it helps....
http://www.rsdfoundation.org/en/en_clinical_practice_guidelines.html
Love and hugs,
Cathy
I was diagnosed with RSD after breaking my leg last February. I too have fibro as well and at first thought the symptoms were just a fibro flare.
There is a RSD group on DS, but it isn't very active. There are a number of people here with RSD, so you're better off here.
If you google RSD you'll find a number of websites with info.
I haven't done PT since I developed RSD but there is a wellness center opening in Sept that is a 1/2 hr away from me and I'll do water PT. Water PT is the BEST thing for fibro and I think it will help the RSD as well. My pm doc said that keeping what mobility you have is essential with RSD.
I also take Lyrica and Zanaflex, as well as staying on prednisone that I was weaning off of after being on it for 17 years. I read somewhere that prednisone helps RSD but I wouldn't recommend starting it unless you absolutely have to- it has way too many side effects and I've also found it exacerbates fibro.
Welcome to our group and feel free to message me if you have any questions about RSD.
Sandy