I get that nightly and daily, wakes me frequently at night and during the day I just grit my teeth, vibrating inside until it passes, mine is from bone on bone and nerve pain. Those moments surely make me feel very, VERY alive lol. (i use humour to try and stay 'above' the pain). Do you know where it's coming from? It may be something to look into, just to make sure it not and organ or anything else having difficulty. Either way it's truly seer utter hell, and I understand what you're going through. Does it come on when you turn or twist a certain way? These are all things that I have noticed i myself and i do my best to move around without aggravating those injuries, It's a real pain in the you know what, yet it's better than those bolts of pain. I hope you can find the reason and get something that helps you with those moments, all my best to you, Blaine

It's not unusual for me. My pain number never dips below a solid 5, but I'm used to that on a daily basis, when I do stupid stuff, like fish all day and push myself beyond my limits it's not unusual to have flares that are off the charts. Stress levels also have a big factor. I can keep my pain flares down by keeping my stress level down.

It may be time to talk to you Dr. about your LA pain meds, if they're not doing a better job of keeping your pain under control the other thing, perhaps talking to him about adding some type of light PT, water therapy if you have a pool nearby...I know you've got a lot going on at your house and are frazzed a lot, that can definitely stir up the pain trucks!

Getting out by yourself in a pool and relaxing/wading around for a bit doing water therapy might be just the ticket to get you some downtime and help that pain settle down.

Kat

Yes! :(
Big hugs & comforting purrs.

Yes, sweetheart. I get it too; mostly when I least expect it and it's horrible. The severe jolts of pain I get come from the shunt I have if I twist or turn a certain way...or if the free floating 12 inches of tubing gets on my phrenic nerve then sharp jolts of lightening shoot up into my chest cavity making it feel like I am having a heart attack. NOT FUN!! Nothing to take for it just grit teeth and bare it. Otherwise pain is at a constant 4 or 5. Sending all my love and hugs your way that these episodes will decrease in frequency and lessen in intensity:)

I have DDD and sciatic nerve problems but this is strictly from my fibromyalgia...it's rediculous! I don't want to take any thing stronger for it than the hydro. I keep hoping the weather will hurry up and get settled in the warm temps......thinking this will help a lot. I sure hope so anyway.
Hugs to all

Yep! Sometimes it will hit me out of the blue like a Mac truck. I can be fine at 3pm and by 4pm I am down for the count. I hate it. I'm not prepared for it. Most of the time it comes on slowly and I can prepare and even fight it, and sometimes head the worst off. When it hits like a truck, it is simply survival mode.

Hang in there my friend. Be gentle and take care of yourself, ask for help, and don't forget to drink lots of water.

Sending hugs, love, and comfort.
Tonna

So sorry you are in horrible pain sweetie :( I too do this. My pain never goes completely away, but I have learned to cope with it. I have a high pain threshold, so I usually don't notice it until it gets severe all of a sudden. I know what you are talking about. Then, it gets ahead of you and takes an act of God to get it back under control. You are not alone. Hope you feel better soon. Hugs to you !

Lori

Like Tonna,
MIne hits like that around 4 or 5pm- just when it's time to get dinner on the table. And yes, it's my fibro pain as well.

I have to agree with kat that water therapy is just the best for fibro pain.l've been doing it off and on for 15 years and always felt my best when I was able to be in the pool 3x a week. I now have a water pt script from my pm doc but have to wait til after my gb surgery to start. I can't wait. And it is down time as well- relaxing from all the craziness of life. it's time just for you.

I hope you have a therapy pool somewhere near you. it has to be warm water. Cold water will kill your fibro and make the pain10x worse.

I just got a crockpot which is helping my situation because I can put dinner in the pot in the morning when I feel well and when that truck hits- my family can dish out dinner themselves.

Sorry this is happening to you Dixie. I think it's just the progression of the disease. And I've almost put 911 on speed dial for it too.

Sandy

I wish we did have a warm pool somewhere close. I tried the YMCA pool and it was way too cold. I just would hurt afterwords and so very tired I couldn't get out of bed. My husband is going to buy me a hot tub this coming fall. I can't wait! Hopefully it will be big enough to do a few exercises in it too.

The cerebral palsy center in the city about an hour away from my home has warm water therapy. Maybe this is something to look into!!

I also have this happen to me frequently. Most days with meds I stay around a 7 on a rare occasion a little lower. Have you ever tried self hypnosis or guided meditation? I have been doing this for almost 10yrs. You can just google it type pain self hypnosis you tube. This will bring up many videos to relax to. You will never be totally out of it or bark like a dog lol. If you find it help you can also google self hypnosis pain cd's many of the sites have sample recordings so you can find a voice you like. Most are a mp3 download but you can convert it to burn a cd. or order one. Hope this helps if you have any questions on it send me a pm.
Hugs & God Bless
Lisa

Dixie,
At the cabin where we got married there was an indoor Jacuzzi (6 person) and when we returned there for a vacation after my fibro had gotten so much worse, it really helped. Even in a small pool you can do some leg exercises And if it's long enough, even some arm exercises. But even the warm water and Jacuzzi sprays will help immensely.

Sandy

There's a Hummer that visits me on a regular basis and I think I may have gotten caught in the Street Sweeper that went through yesterday.

Hang in there!

the garbage truck got me today

LOL Cherry and Healther....bless your hearts....hope you both only get hit by butterflies today. Hugs