Gripe away! Sometimes we need a short pity party. Limitations are the worst for me. I have always been an on the go person and when I feel just a little bit better, I over do it. Every darn time. You'd think after 10 yrs, I'd become smarter, but nooooooooooo lol

I have become such a good actress hiding my pain because when I worked, no one wanted to be around a grumpy, sick person bringing them down, plus I had to hide it from the customers. Doing this doesn't help people understand either.

Now I can't work after being rear ended on the hwy when I was stopped at road construction. I was in tears one day when I answered the door. There were two Jehovah Witness ladies. They asked if they could come back and I said I have chronic pain and don't always feel well. The younger one said fibro?? and I said yes, along with other conditions. She said but you keep smiling!! Guess I need to write my Oscar speech lol.

Awwww so sorry 51percent. I think family think they have the right to say whatever they want and are cruelest of all. I don't have anything to do with my siblings for this reason. If they are not supportive, then I don't need the extra stress and negativity in my life. I surround myself with people who understand and are supportive.

Limitations do suck!! I cleaned my bathroom and bedroom last night. Just using the vacuum is becoming a concern. So no sleep last night, and pain pill for breakfast. Really?!?!
I understand not being able to sit still and watch a show, its one of the reasons my friend no longer asks me to go to the movies with her. How much more am I going to have to give up? It seems like I give up doing more and more each year.
I'm adding to the gripe. Thanks for letting me vent. This is truly a sore spot for me.

Jnufish

I understand totally! I am always having to end up sitting in weird positions in social situations because the pain... I'm scared to do physically taxing things anymore because I know then pain increases dramatically for atleast 3-4 days after.

Hope you a better day.

I have limitations in how far and how fast I can walk. I have limitations on how much standing I can do. I have reached the point where I can do three hours on my feet - that is with car rides added in there before my pain and muscle weakness in my bad leg is so bad I am done for a day or two. I can do a lot more than some of you guys on here because it is just my leg that is damaged - and sometimes I get bad back pain after working because I do not bend down much, and that tends to put a lot of stress on my back. I do this work in pain though while on pain medication and fighting it for as long as I can before I give in to it.

Right now I've been sitting upright in a computer chair for 4 hours with just two small bathroom breaks. I just had my first Norco of the day and the pain is starting to really bother me. I'm going to fight the pain for another two hours and then move my operations downstairs where I can elevate my legs. I usually do all of my standing work, standing only. I do not bend down at all. I stand straight and do dishes, vacuum, and sweep. I have to sit down in a chair to clean my cats litter box, and I have to have help carrying stuff up and down the stairs. I also get bad pain in my right arm, because I have to use my arms with my fist closed to push myself up out of the couch, and sometimes it pulls my shoulder and arm to the point where it throbs and gets numb for a few hours. I also have to hols onto towel racks and door knobs to lower myself down into the toilet seat. This also puts a lot of strain on my right arm and shoulder. So the more activities I do, the more I damage the good parts of my body in order to compensate for the loss of function in my bad leg.

Any how, vent away. I've done it on here many times before. Sometimes we need to get this stuff out of our system. I hope you're feeling better. Hugs!

I push myself off of the couch with my hands in a fist and all of the weight of my body is on my arms. Sometimes I forget to go slow and get up too fast and it messes up both arms. Also, after I've been sitting in this computer chair for more than two hours, it takes me 2 minutes to get back up. I can't just jump up. I have to position one hand in front of me on the chair, and one on the side of the chair, then I rock back and forth a few times in order to get enough momentum to get up out of the chair completely. This really takes a lot out of me. Before I used to be able to jump right out of office chairs. I have to remember to take it slow or else the pain gets worse!

I appreciate everybodies responses because I feel connected in that we share a common fight. I have lived feeling very alone in my struggles and I am really glad that i joined this group. When I read your stories I can relate to your physical emotional and mental pain. I truely believe that you have to live it in order to understand it. Case and point. My mother who is almost 80 is now starting to suffer with limitations. One year ago she was playing golf. Golf is a dream for me. Being able to walk around the block is a gift. Last year I couldn't. I don't want to climb mountains or sky dive. I just want to enjoy the basics of life. Thank you all for your support.

@51
Sorry your family is being mean.
My son gives me a hard time but he's only young and he's depressed. But when he tells me he's sick of me being ill it really hurts.

I work and pay all our bills and I have been there for him every time he's needed me...he won't do the slightest thing he doesn't want to and I have had to accept he's immature and selfish right now.

@uncommon it's very lonely isn't it. People say ' how are you' I respond with 'hello' because that's what they mean.

One of my friends drove across town with her kids this am and we went to the park. It was so nice to feel ' normal ' for a while. So nice to not be thinking about anything stressful.
She'll be moving overseas soon so we're going to try to do it again soon.

Boy do i get this one. My pet has back trouble. I have to keep him from jumping for the rest of his life. When I gave up an activity, they did not understand that I am weary and in pain from caring for my pet. They expect that it is no big deal.

And some people yell at me for moving plastic chairs that are lighter than my Bassoon.

It gets wearing. We just have to keep taking one day at a time. And yell and scream at them when too many days pile up on us at once.

I sooo relate! I was basically ok back in March of this year. Now I use a cane. I could already write a book on how many things are hard to do. Everything takes longer. I have insisted on working ft, which is absurd.

I cry almost every time I go upstairs to get home the pain is so bad. I live on the 2nd floor. Once I am inside I'm ok, but leaving & coming home sucks. A lift isn't an option; it's outside stairs. Ugh. I'm so worn out today. I feel disabiled today & I usually prefer handicappable!

Hugs to everyone.

@NYGirl212

can't tell you how much I regret buying this upstairs condo...ar least I won't flood I suppose but the stairs kill me.

The HOA say I can't put up a second rail or a stair-lift...I am pretty sure they are wrong but I don't know if I can summon up the energy to deal with them. ADA isn't my expertise and I am sick of trying to get expertise by paying for it which evaporates...there are too many people milking the sick in the US.

Hi tikka,

YES! It never occurred to me I wouldn't be able to use the stairs at 43 years old. I keep telling myself that I will/could go into remission soon. Unless I win the lottery I can't move anywhere plus I think I have to quit my job and Ssd could take a while. Ugh.

Mine are cement and steel and they are in disrepair so I don't think a lift would even be safe! I try not to think about the future of walking, it's too scary.

Can't think of something positive to say about it. Oh, I'm not dying! I suppose that's good, but this stuff sucks.

Hugs

NY

I have been going through some of this myself lately.. Just feeling so ROBBED of so many things... HUGS