i don't, but there are plenty of people here who do who will offer some advice. i have RSD, the pain bounces. i hope treatments are getting better. also if you can find someone good who really understands pain mgmt and will work with your rheum dr. that would be great.
this is just a twist in your path.
hugs and welcome!

Hello there. I am glad you shared your feelings about dealing with that kind of news. It's a 'sit down" kinda news. You don't know that the pain will never go away. Science is curing things all the time. There are miracles every day.

I know how you feel. I refer to myself as "permanently disabled." My pain won't be just going away, eiither. I am a realist. I know what I can and cannot do, for the most part. I had to go through a long period of acceptance over my condition. I've gotten progressvely worse. So, it's almost every day I have to accept it in a new way. The limitations list grows, but I try to work hard on pushing my limits.

Please take care,

heatherhurts

I also have fibro and was diagnosed in 1994. There are a lot of things you can do to help keep the pain at bay.

First, stay active. No matter how bad the pain is, laying around will make it worse.

Second, do you have a wellness center or PT facility that has a warm water pool near you? Water PT is so wonderful for fibro. I swam 3x aweek until we moved here and there isn't one near me. They're building one about 30 minutes away from me and it will be done in Sept and I'll be the first one in line to join!

Third, make sure you're sleeping well. If not, the doc can put you on a tricyclic antidepressant, taken at bedtime, which will help you sleep better and longer.

Fourth, don't give up! You can live with fibro!

(((Hugs)))

Sandy

Thank you, everyone, for your support! I had a little breakdown for about 30 mins, but I can't let myself cry or be upset more than that, because I'll get out of control. I am also Bi-Polar 1 with anxiety disorder.

I almost never cry, and I felt like an ass for it today. My mother didn't make it any better when she gave me the, "Tons of people have it worse" speech. I wanted my little pity party, lol.

I think I'll be on here much more from now on, finally knowing what is wrong with me, after years of tests, so I can learn to cope with it- With the help of you fine people.

MUCH love to you all.

I just read all of your comments again, and I just wanted to say thank you again. I posted my news on Facebook, where my friends are supposed to be, but only one replied.

*HUGS*