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hi kayla gentle (((hugs))) im so sorry you are hurting so bad..can i suggest a rollenator for you to use? its a walker with wheels and a seat...i use one i call her my ms piggy because shes breast cancer awareness pink and black...shes a life saver

living with chronic pain takes several "adjustments" to everyday living...i dont know how old you are, im 41 and feel im too young to use a walker but i tell you what, i wouldnt be able to leave my house without her

i understand the strain you think you are putting on the one you love...if hes anything like mine, he understands completely and doesnt mind helping you

maybe you just cant do that job anymore, maybe its time to make an "adjustment" in that area..if you cant do the job you just cant hun, try not to beat yourself up, youre doing the best you can

just know you are never alone here...i come to this group for understanding support and to not be judged...its safe here so pull up a chair and stay awhile, post often because it does help to "get it out"

gentle (((hugs)))

Thank you both. To answer your question, I am 22. It has been a very rough adjustment. Trying to find distractions is hard. My bf just got GTAV, so watching that is amusing. I have also been writing and playing Dragon Age (fun game, very involved.) I have come to terms that my job may be too physically demanding to continue, so that is ok. Just hit a rough patch today. Thank you for the hugs and support.

Hi Kayla,

I don't think we've met. I'm Paula and it's a pleasure to meet you. I'm really sorry your feeling so down. Your around my daughters age. She just turned 24. I can only imagine how your feeling. You have a boyfriend and want to go places, do things and so forth. But your pain is stopping you. I'm sure that makes you depressed/down and if no one is understanding that your in terrible pain it makes it even harder on you. I can understand that.

What confuses me is you being in so much pain still and your doctor telling you to go back to work. Plus you not getting anything for the pain. Isn't your doctor giving you anything for the pain??? Have you seriously thought about maybe going to another doctor for a second opinion? Your only 22 and if it was my daughter I would be getting another opinion if she was still in as much pain as your saying. Wouldn't hurt right? You need to find out what is going on.

I hope your pain eases up and things get better.

Best wishes,

Paula

Paula, thank you for the reply. This doctor us my 3rd opinion... I was taking naproxen, but my body built a tolerance to it. I just turned 22, so its nice to be in here where people understand. Sadly there is not much I cab do because my condition is that I have vericose veins on my uterus. Most women with this have a hysterectomy (they are usually older with 1-2 children) so any other treatment is uncertain if it will work. The pain was so bad at first that they thought it was endometeiosis...

I'm looking for a new PCP, but no one has ant openings for at least 2 weeks. Thank you dot the support :)

Kayla,

First I am sorry for your pain. Second has embolization been considered? Since you are so young it is amazing this was discovered so quickly. Many women have gone years without a proper diagnosis for this condition. Any pelvic floor or uterine pain is difficult to treat as you have discovered.

If this continues there is the financial issues. SSDI for disability? If you receive treatment that is effective then you would not longer need the SSDI.

Hugs,
Joanne

Hi Kayla,
Your in great hands here , I agree with E, get yourself a rolinator, I had to finally so it, I am 46, was really embarrassed, and wouldn't take it to work but had to finally push my pride aside and look out for my safety .. The girls at work call it my Harley because its the same color as my mc.. I call it my Catalac, it is soo much better than to other walker I have..
I hope you can feel better soon, some days we need to have a day of being down, there is nothing wrong with that..

Hugs to you!!

JoannE, I was diagnosed thru a lap, because they thought it was endpmetriosis. I'm glad they found it so early, at least I know what I'm up against. They want to try to wait on the emoblisation for a while at least. I'm only a month out of my last surgery. I do not qualify for FMLA because I have not been at my company for a year. We are fighting through though. My BF refuses to give up. I'm blessed to have him by my side.

They are hoping to manage the pain for as long as possible. Thank you for the kind.words.

Bertie, no mention of a walking aid as of yet, but I would feel odd using one to be honest. I have too much pride for my own good. Thank you for the reply :)

Hey Kayla,

Sorry the pain is still so bad. Can I ask why are you choosing to see a PCP as opposed to an OB/GYN? Have you considered that a GYN might have better ways of treating your illness and managing your pain better? Just a thought.

I hope that you find a job that works better for the stomach pain, lifting 40-50lbs repetitively cannot be easy with low abdominal pain.

Hang in there and take care.

Kat

Kayla I hope your pain got better as the night went on. Sounds like we both had a horrible Monday. I hope and pray Tuesday is better for both of us. The only way I could walk tonight enough to care for dad was I kept my ice pack on my hip/groin all night and used my cane.

I have a rollenator and a wheelchair that I haven't had to use in months. I have a feeling this Fall/Winter is going to be horrible for my tendon pain.

Hoping you slept good and your Tuesday is pain free.

Healing hugs,
Marci

Did not sleep very well. Pain is still at about an 8 this morning. My GYN wants to see me later this week, so hopefully he can prescribe something or tell me what I can do differently to help the pain.

Katlyn, my GYN is amazing, he just doesn't seem to understand that walking around is so painful, let alone work. I have been looking for a new PCP for a few months. My current doc and I don't see eye to eye. When this started she insisted it was the flu and that I was fine. Even after the CT that showed the problem. Her exact words 'vericose veins don't cause pain. You are fine.' So I think I need a new PCP who will listen. I could have been getting treatment 2 months ago if she would have given me a referral.

Thanks again for the support and kind words. I'm focusing on getting this under control, then I will worry about jobs/money/the rest of life. No use stressing when I can't change it right at this moment. What will happen will happen, I just have to get through it.

Prayers for you!!!

Saw doc today. He pretty much said that he can do nothing else to help the pain. He gave me the # for pain management. They can't see me until Oct 11! It seems so far away.

In the meantime they don't want me to take ANY NSAIDS. I have been on various ones for 4 months, and they are concerned about my stomach.

So I can take Tylenol for the next 2 weeks. FML...