Markleboff,

I only visit west palm two to three times a year. I do know a few of us are in Florida, but I think North FlA. I Hope you find someone in your area, but untill then, welcome to our group.

You'll find a lot of great people here with different pain issues. We''ve become a little family here as,most of us don't have family who want to help them.

I Hope & pray that you have a low pain day.

Hugs,

Mary Ellen

thanksfor the welcome but i have been here for a few years, this place saved me having people to talk to, the regular people just dont understand. yes everybody i have met are on the west coast or too far north of me. and there are no support groups near me and i cant drive far, it just hurts too much. thanks for the reply and love your dancing chicken where did you get it ha ha mark

Hi there and welcome to the group!! I know you mentioned you have been around awhile but since I have never seen you post I want to make sure to tell you hello. I live in GA and I am unable to drive so I have family here that I love!! At times, it would be nice to have all of you in my living room and it would be nice to have a real hug so I get the wish/desire to meet up with folks. For the time being we will still be here for you!! I look forward to getting to know you better..

hi again,
Sorry you haven't had any luck. maybe you could call Good Sam or St. Mary's and ask about forming a cp support group.I know Good Sam has (or had) a lupus support group when I worked there.

For some reason these hospitals have a ton of support groups for people with cancer or heart disease, but ignore the ones who don't have a million support groups to start wth.

Sorry I can't help you. If I still lived in PSL, we could be our own support group.

You know, Jenna lives south of WPB. maybe you could pm her and check out where you both live.


Sandy

thanks all for the reply's, i don't post much i have so little energy, and most days all i can manage is to watch tv (going crazy) today i feel ok but running out of steam already and i have no one to help me my family disowned me, anyway forgot what i was going to say but thanks and feel good to all

Personally, I think society tends to think that CP is just "slacking". That if we "would just buck up" things would be fine.
Since there are no actual outward signs or proof of the pain, people eventually just get sick of hearing about it, worrying about it, thinking about it.

They only know acute pain. From their perspective, after a couple days, weeks, months, THEY got up outta the chair and "got moving" and "fixed it" themselves.
Even thou them getting "outta bed and getting back to life" had NOTHING to do with their recovery because acute pain will eventually resolve itself, they can't imagine chronic pain. So they run and hide their heads in the sand.

The other problem is that we can't manage to keep regualar scheduls anyway. I can't promise to attanc meetings even once a week. Church on Sunday's is frequqntly a crap shoot.

Anyone trying to start a group for us would have to be very dedicated! and willing to spend nights wiaint for us to show up late from being slow to function at home.