Good luck at your neuro appt. tomorrow.

I hope you find out something hopeful...

Keep us posted!

Take care.

Jeri

I'm holding down a relationship and at times hard.
he wants to go out, I want to stay in.
he goes to drs etc.

Mine does not get it at all! Even the celiac is beyond him. And he had to come to hospital before they would release me. A nutritionist told him I would die all over again if I had to have gluten in my environemnt. We tried to have dinners at my hose with friends. They brought bread "because we know you won't get any". RUDE! He served it.
We don't have many friends anymore. He does because he can eat the dam bread. Me - I am all alone.

Now he is getting old. He is starting to understand. But old age and CP are not the same thing.

Good luck with the doc, relationships are so hard to maintain I had to leave my wife after a34 year abusive marriage, even if I diddnt have chronic pain from diabetic neuropathy , I would have left anyway, I just waited too long, I waited for my kids to grow up. And now my 2 girls hate me and won't talk to me, so be thankful of any relationship you have at all. Being all alone in pain is the worse thing imaginable ..
Good luck feel as good as you can, and try to keep as much family as you can

Emily,

You do sound depressed to me. A lot of times, anti-depressants are used at LOW doses for neuropathic pain. Maybe you need a higher dose of them for your depression. Talk to your doc about raising one of them to a level that's appropriate to treat depression, not neuropathic pain. And you need to research which anti-depressants you're on if you're on a lot of them- they combination could lead to serotonin syndrome if you're not careful.

Relationships of any kind are especially hard for those of us with cp.
My husband left me in 2011 because he couldn't handle being the caretaker any longer. Thankfully, he came to realize that I was more than just cp and lupus and fibro and RSD. Our relationship is stronger because, 1) he finally "got it". and 2) I realized I was using him too much for things I could actually do. Both those things were essential for making the relationship work.

I've lost most of my friends because of cp/other medical issues. I had to stop working, and most of my friends were from work. My best friend deserted me and stole my dog. We had been friends for almost 25 years and she just decided I wasn't worth the effort. You never know a person as well as you think.

But I still have one good friend who also has cp and she has an amazing spirit. I treasure her friendship and even though she lives in Fla. and I live in NJ, she is still close to me.

Work on the friendships you still have and don't waste your energy trying to change the people who have faded from your life. Some people will never understand what we are going through and they are not worth the effort. Surround yourself with positve people who love you for YOU, not your diagnoses. THEY'RE the ones who will stick by you. The others will jump ship like rats if you have a crisis. Let them jump.

You're so young. Try not to worry over romantic relationships right now. It's important to find yourself and love yourself first. Then you'll attract quality people into your life. Desperate women tend to attract desperate men- and there's nothing worse than a desperate man.

You seem to be on the right track with your health problems. Keep working on taking care of you first. Do whatever is recommened/needed to help you feel better. The other stuff will fall into place in the future. Put your energy into getting better, your emotional health and your education. Keep your priorities in line and things will work out in the end!

Bless you Emily. You are a sweet girl and I'd be so proud if you were my daughter. Your maturity level is so much higher than most girls your age. See? That's one of the benefits of having cp- it makes you wise beyond your years.

Sandy

Thank you guys so much.. I got my nerve conduction test done. They had to do several repeats on my feet and back of my knees because my nerves were acting weird. It was terrible! :( the doctor that read it said the results were "more or less normal".. I'm going to see my actual neurologist on the 19th. I'm just really confused; I have severe hand and foot pain that I've assumed was from nerve damage but the test showed I was negative for peripheral neuropathy and carpal tunnel. Which is good, but it just leads to more questions..

Emily, have you seen the celiac specialist yet?

BTW, Sandy, great advice!

Jeri

I agree, it is so hard to maintain a good relationship with CP especially when your spouse just doesn't understand. I have been married for 14 years now & living with CP for the past 5 years & I've heard it all & still do. I love it, it's all in my head, I'm just plain lazy, I could go on for days. It's really hard because I used to do it all, 8-16 hour days & now I can't even work, heck, I can't even keep the house clean. I have all to do to keep up on day to day stuff with the 2 boys & now add a pregnancy to the mix. I don't know how us with CP do it.

Anyway, best of luck at your next appointment, hopefully they figure something out.

If anyone around here has a reason to rant, I'd say you do. Hopefully your new neuro will have some ideas that will help you get some things back. You can be over-medicated just as easy as you can be under-medicated and it can cause alot of problems.

Do you see a Pdoc (psychiatrist) at all and does he have any say in all the psych meds your on for the neuropathy? Putting too many of those meds together can cause a whole list of complications that will make you feel way worse. If you don't have a Pdoc inputting on the psych meds, I'd definitely talk to your new Neuro about it.

Try not to feel like you have to take care of everyone, you can only do what you can do, what your able to, that which doesn't cause you more pain, stress and depression. If people have trouble understanding that, then it's their problem, definitely not yours. You have to take care of You right now.

With all these kinds of problems complicating things, relationships can be hard...but at some point people have to figure out that You are the most important thing for you to take care of. The adults in your life can take care of themselves.

I sincerely hope that tomorrow goes well for you.

Kat