hugs - I have nothing great to say, so I will just offer an understanding hug

Hi. Welcome to the group but I am sorry for the reason. Have you gotten more than one opinion for your medical issues?
Gentle hugggss and feel free to come and vent anytime you need.
Jasmine

thank you both. ive had a ct scan with dye and one without ive had an mri a plethora of different ultrasounds, seen a urologist ive had a colonoscopy.. my endometriosis specialist said she thinks it could be stomach realted since she didnt see any issues with my other organs..

What type of pain meds have you tried ?

umm.. they've given me anti depressants to try and treat ibs.. oxycodone, hydrocodone, percocet, tylenol and all otc stuff, tramadol, nerve pain meds, tizanidine,umm.. other things.. i cant remember

have you had surgery? They can remove it that way

I am so sorry you are feeling so badly.It sucks to be in the position you're in. There unfortunately aren't many answers for endometriosis. I know someone with a severe case of it like you and she had made similar statements. She has been trying to get surgery but they refuse to because of her age. They keep telling her because she is of child bearing age, they refuse to do a hysterectomy. It's a crappy position for sure.

Welcome and come on in and vent your frustrations anytime!

Love and gentle hugs,
Jenna

yes i had a lap done on october 30th but ive had no relief. i know its still early, but my doctor seemed concerned as well. :( i dont think the pain is caused by endo

It must suck not knowing where the pain is coming from. I hope you can get some answers to why you are in pain as well as some much needed relief. I'm a male, so I'm not really qualified to speak on your condition, but I do understand how terrible chronic pain can be. I hope you feel better soon. Hugs!

When you say pain meds don't help, do you mean they don't help at all or well enough ? If they don't help well enough, perhaps you need a long acting pain med. Unless you're tried those. There are non medication fors of pain management like seeing a pain psychologist and biofeed back that can help along with the meds.

I feel so bad for you!!! This really sucks to go through!!
It is really awful when you keep struggling and following treatement and no one can tell you what the problem is!
From my experience of caring for patients with scar-tissue inducing illnesses, the pain is real and it comes from the scar tissue as well as from surgeries, because during surgeries the nerves get cut.
I guess another question I would ask about this pain is if they ruled out arterial insufficiency to the pelivis. This is a far shot, but if endometriosis invaded the arteries, it may be possible?
If nothing worked for pain, i would probably consider a spinal cord stimulator. Have you ever tried TENS unit on your abdomen or back?
((( hugs))))
Hope you will get some answers!!

Hi-I'm sorry you're going thru this but ..oh what was that saying I just heard..people go thru tuff times but a tuff person gets thru...

Have you thought of a new dr? With new ideas and options? I have known people who unfortantly had to live on mashed potatoes while their dr sent them thru every medical specialist etc till they finally figured out the problem...sadly even though we live in modern meds we still live by trial and error
Also youmight go online and put forth your symptoms etc to drs overseas-they seem to be further along in medicine than US at times.

I so sympathize with you kdoyle13. I have endometriosis and adenomyosis. I had a laparoscopy in 2005 and they were able to remove much of it but it was very literally everywhere. My doctor told me if I wanted another child I better do it asap. It took a year to get pregnant but I finally did. After my daughter was born my doctor said we could try the Mirena IUD as other patients of his had success with their endo pain with it. It was that or a hysterectomy. I was actually approved for a hysterectomy by insurance and he was willing to do it even though I was only 25. There were no complaints from the hospital either because it was so bad. Anyhow, the Mirena has been an absolute Godsend for me. It has worked since my first one was put in March 2007. I had pain from endo/adeno 20 days of the month...with ovulation and menses.

I know hormone therapy doesn't work with every endo patient but maybe discuss 365 hormone treatment with your doctor? It has worked very well with mine.

I hope they find out if your pain is from endo or something else and find out how to treat it.

(((HUGS))) You will be in my thoughts...I know how painful endometriosis is. I wouldn't wish that pain on anyone. I had 2 natural births and I felt, many months, my endo/adeno pain was worse than childbirth.

~Michelle