Chronic Pain Support Group

Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not alone in your pain.

0 Online
0 Online

Back / hip pain linked to hysterectomy?

I'm curious how many women here had a hysterectomy years ago and have back pain. Do you also have hip pain? If you had it before the hyst, has it gotten worse? It seems like the anatomical / skeletal changes caused by hysterectomy would eventually cause back and hip problems. I'm 5+ years post-op (gyn should have only removed a cyst or one ovary but took everything) and have occasional back pain and fairly frequent hip / upper, outer thigh pain. The hip / thigh pain feels like poor circulation and is especially bad after sitting for long periods.
Thanks for your input!

Replies

deleted_user
deleted_user

I have had back problems before I had my hyster done. But I would say I do have worse days now with my back/hip pain. Guess I never thought about it but hmm... I wonder if mine is linked? I am about 2 years post hysterectomy....
fighting4change
fighting4change

Hip pain seems fairly common even in the short-term because of the convoluted position of the body during hysterectomy surgery. The weird thing is that I had hip pain the first couple of years in my right hip but it's gotten better. I now have different feeling pain (poor circulation) in my left hip plus some back pain.
deleted_user
deleted_user

Yes, but I hurt my back and had surgery on it I'm 4 years out,could have to do with lower or no hormones,and slow calium levels.
Chemo and radiation I've heard causes bones to be more brittle and everything in general is more painful. But this adds a question to add to my list for the Dr.
honor435
honor435

i have major low back pain, hyst in 2000, they dont why i have pain!hips not so much. Iam having a lap to see if I have adhesions on the 22nd, maybe you do too?
deleted_user
deleted_user

I am 4 years post op; they took everything because of cancer stuff.
I did have back pain then but not near as bad as now.
I have low back pain and hip pain that goes down my left leg. My pain is alot worse now.
I never thought about a connection.
deleted_user
deleted_user

Wow, interesting. I am 41 now, but had a hysterectomy when I was 23. I have chronic low back and hip pain that has been getting worse as the years go by. I also have left shoulder pain (surgery about 6 yrs ago) I am so frusterated! I work in healthcare, see the addiction issues with pain meds and so afraid to fall into that. I recently tried Ralivia. It worked for a a couple weeks (OK) but now I am getting NASTY side effects- headaches, blurred vision, severe nausea, heartburn, not sleeping, heart palpitations- you name it- I pretty much got it! I am calling my doctor today to discuss a switch. I know it is going to have to be strong as I have tried all the OTC meds, accupuncture, physio, spent thousands on "devices" like decompression belts, pillows, natural remedies....Any ideas?
fighting4change
fighting4change

Thanks for all the replies! I'm sorry you all are also dealing with this! Adhesions can also cause pain. But the assault to our pelvic integrity causes the spine to compress and the rib cage to fall onto the hip bones which is usually the explanation for the lower back and hip pain. I can see evidence of this compression in me - I have a crease 2" above my navel all across my stomach. It started to develop about 18 months post-op and just kept getting longer. It's certainly changed my view of doctors - there seem to be too many that do more harm than good!

I wonder if using an inversion table on a regular basis would help - seems like it would kind of decompress the spine. Have any of you tried that?
fighting4change
fighting4change

Resurrecting this thread. Anyone else have input?
deleted_user
deleted_user

YES! I had a hysterectomy in August so I am not even a year out. Not only do I have excruciating hip and lower back pain now but I also have pelvic pain. It actually feels like the pain is in my bones in my pelvic region. After walking or moving around for a bit the pain is so intense that I have trouble doing anything else for the rest of the day.
frkrhe
frkrhe

Wow I could have wirtten this myself. I had a total hysterectomy in 2003 after a breast cancer diagnosis in 2002. I recently found out that my spine is starting to curve as well. I went to a orthopedic/spine doctor today because I think this problem is beyond my GP's area of treament. So I am to have an MRI to check the spine as well as my hips where I have arthritis which he thinks upon exam is not arthritis. I have good periods of little to no pain and then days where I want to scream or cry in pain. I have done a few back exercises when the pain gets bad and they seem to ease the pain some what. While I do not want to rely on pain meds tylenol is not doing much and I can't take motrin because of clotting issues. I do want to start with the least invasive form of pain relief and I think maybe this could be physical therapy and work from there. So I do think there may be something to this.
deleted_user
deleted_user

Still, don't rule out adhesions they have caused me a world of hurt. I had my hysterectomy at 28.
fighting4change
fighting4change

I appreciate everyone's willingness to share. I'm so sorry you all are suffering and hope you find relief!

Regarding the spine curvature - I can see that my spine curves toward the left of my sacrum. It used to be straight ending at the middle of my sacrum. My tailbone also looks bruised but doesn't feel bruised.

Regarding adhesions - I don't have pelvic pain or bloating but I have bowel issues that started almost immediately post-op including a malabsorption diagnosis in 2010. Not sure if its pancreas or intestines but intestines make more sense to me. GI doc had the gall to say that the problem's not related to my surgery! Huh??

You would think that doctors should know the anatomical and skeletal effects of hysterectomy but many are clueless or don't want to admit it because that would be acknowledging the harm being done.
deleted_user
deleted_user

Wow this is amazing because I too had a total hysterectomy when I was 32. And since I have had constant problems with my lower back. I often end up going to see a Chiropractor for an adjustment. I also get sore hips. This is fasinating that it all could be related to the hysterectomy. Thanks for bring it up. Hugs!
fighting4change
fighting4change

CW - Sorry you're also dealing with this! How much relief do you get from adjustments - what is your pain level before versus after (on a scale of 1 to 10)? How often do you have to go? Are you on a lot of pain meds too - Rx or OTC?
deleted_user
deleted_user

Just to throw this out there... A lot of what your describing also falls into the symptoms of Endometriosis. I have stage 3 Endo & have a lot of GI issues, back pain, hip pain.... Just something to consider. I have several cysts on both ovaries, had a lap in 2010 and will be returning for an additional lap this year. I have Endo growths in my intestines, on my bladder, colon, uterus, tubes & ovaries. Plus I'm quite certain its other places, just yet to seen or discovered. Just wondering if Endo has even entered your thoughts... With pain & cysts... Right up the alley of endometriosis...
Good luck.