And is it true that if you talk to someone you trusted about your pain and what your dr said and they even came to you some times. Belive it or not it was his mom and now she is saying "Well honey you have let your pain become your disease" I swear this tv needs to turn on im going batty and when I try to talk to someone I trusted to come to my appt tomorrow this is what I get. i didnt know this could happen I just needed to know that someone cared enough but in fact no one around here doesn. im most likely moving back home gonna be hard though to find a good pain dr like I have now took me half a year just to know what I had. Im really scared guys seriously

Im sorry you are going through this! It sounds like you have zero support around you. Do you have anyone in your own fam that supports you? I dont have answers but posted because I want you to know that I care. We care here -ok?
Do you have a good Dr? Maybe you can bring your H in the room and the Dr can explain why you feel the way you do. Why things are the way they are. Its almost impossible for someone that DOESNT have CP to understand fully... they just think get over it and get on with it and its not fair to compare - because you cant. Would someone say to a diabetic... "you dont need that insulin... just get on with your day and forget about it." NO they wouldnt say that becuase that would be a ridiculous statement.
You need some people around where you are that are on your own team because quite frankly ... you are not getting it and probably wont get it from the people around you right now.
Maybe think of yourself first and do what YOU need to do to feel better because its that much harder to heal when you have roadblocks like these ignorant people that get in your way.

AH I wish you all the luck and hope I can send you - you deserve it.

As far as the what is Normal? There isnt one my dear... its what is normal for YOU because we all have different situations -

I wish you the very best~
LFH

I love this site. I am so sorry for you pain and for your dilemma. Nobody deserves to feel the way you do right now. But thank god for this site - it reminds us that we all feel the exact same way at some time in our lives. I know exactly how u feel. I wish I knew how to fix it - but at least I can support u and tell u that u are not alone. I am on a leave of absence and as soon as I feel like I am doing Ok and keeping up with regular things around the house, I try to do a little extra - and I fall apart. I WISH I could work. I wish I could participate the way I used to. But we have limits and we the patients are the ones who have to learn to accept them. It is unfortuante that u don't have support at home. But then u need to look elsewhere for support, come here and make sure u seek outside therapy to b sure that you are taken care of emotioanlly. What is really important is that u are ok with accepting your limitations. If u are not made to feel that way at home then u need to find support outside - it is important to your mental and physical health.

Meagan, i feel your pain , seriously the emotional part . I have a feeling your doing more and more around the house for those "wifely" duties because of what your husband and family says. STOP. Your just causing yourself more pain. Try to get it into your head that your pain is real, you arent going to try to get them to shut up by doing more. Your the one that pays for it with pain. I think part of the problem with those who dont understand is they one dont have the pain and two they cant see it. I mean if you had a broken leg and they saw the cast, then they would see it and would understand more. You need to find some support. Wether it be on church on turning to us for support. Have you thought of therapy? it will help you learn how to deal with the depression your in. Who couldnt be depressed with what you experience. Try to stay as strong as you can, you only doing what you can do, they are going to gripe anyways right? Maybe taking them to an appt with you to the drs will help them "get it". asking the dr to explain to them why your in so much pain etc.
My husband goes thru "fits" occasionally and he goes on about me never doing anything around the house, him having to take care of me etc. (of course other times he is so sweet, loving and supportive). I have done the doing to much so i paid for it with pain because of his occasional rants. I keep my pain complaints, my fears of whats going on etc to myself, well away from him. That way i never hear all i do is complain. I start therapy soon. I am looking forward to it. Good thing is that he is also starting therapy soon, as ordered by his PM dr.
You hang in there. Take care of yourself. Your husband has two hands and legs right? (i hope). If he does he is more than capable of doing things that you cant. As to comments made by others. one day maybe just tell them that they should be glad they dont have any of your pain, that you love them enough that you wouldnt give them your pain for even an hour. That you would appreciate the support rather that the belittling. sorry for the lonnnnnnnggggggg reply...i know how you feel. you can talk to me anytime you want ok....
tina

oops see i didnt even reply to you on what i can do in a day.
on a good day i get up. Sit down take my meds and drink a few cups of java. Make my bed. and clean the cat box. I have to sit back down by then. If i am havign an ok day, i will try to do some dishes, sweep, time to sit back down again. I cook rarely anymore, it hurts to badly to stand that long. i spend the majority of my time in the recliner, reclined with my heating pad. I hate it but thats how it is. I normally end up taking a nap during the day because of my afternoon dose of meds. I am on the fentanyl patch 50mcg/hr every 48 hours i change it, 150mg lyrica 3x a day, tegretol 400mg 2x a day, methadone 2x a day, paxil at night and i just started chantix to help me stop smoking.
I have learned what my abilities are, i do all i can and sometimes i still push it but thats it.

Hi everyone I just wanted to give everyone an update. I am in a safe place and I called my counselor today. She put me back on my cymbalta and her earliest opening was Tuesday morning I gladly took it. I also spoke to a marriage counselor and he is going to get to me with our time to meet with him on monday. Guys thank you so much there are no words that I can say that would express just how happy I am to know about this wonderful group of people. My pain isnt as bad as it was last night but I did put the patch closer to my heart and I think it is helping me better. Im still really scared of what will happen but im so grateful for you guys. Right now Im going to do the best for me to try and get my pain levels down and i know my limitations but no one else wants to accept them.