Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
Well, there goes logic!
My new years resolution was to stop pushing myself so much. This weekend, I have exercised, had my best friend and our boyfriends over and partied until two AM Saturday night, then went out to the movies last night and came home and continued to stay up all night and watch Fringe with my mom.. Today, I seriously can't move. My whole body is either burning or feeling like it got hit with a hammer.. Sometimes I guess I just want to try and forget that I can't do things, so I did. And I ended up doing them all. It was the best weekend I've ever had but now I'm going to be stuck all day between the bed, toilet, and bathtub. I make the worst decisions ever.
The good news about my neuro appointment is that I don't have a tethered cord, so no surgery. Which is awesome. But the reason it's felt tethered is that my bones have continued to degenerate which has made the Schmorl's nodes that much worse. My syrinx is also the exact same and he has come to the conclusion that it will never go away. So, I have accepted this. I really have. The only thing I have to hold onto now is the hope that my stomach will start healing soon and I can actually begin treatment for the bone pain and neuropathy. At the moment, I am taking SO much pain medicine. Constant drugs, massage, acupuncture, TENS, and everything else possible; and I'm still in agony. (Even when I'm resting and doing mild exercise.. after a weekend of being this active I guess I'm responsible for all of the extra pain.) My foot pain has also been worse, because my arches are now falling along with the added neuropathy.
I just want to give up. Just say fuck it and give up on life.
I've waited all year long for the tournament I just got benched from because I've missed so much practice from all the pain.
I have a huge jazz piano concert coming up that I desperately need to practice for but my hands get so inflamed its not even worth it.
I'm losing my friends because 'I've changed' (I just stopped caring; if they were in my position I'm pretty sure they would too)
Okay. I'm sorry I always just post depressing stuff when I'm on. I just get so tired of it all.
I truly hope you all are having a better time than me right now and have been pacing yourselves.
My new years resolution was to stop pushing myself so much. This weekend, I have exercised, had my best friend and our boyfriends over and partied until two AM Saturday night, then went out to the movies last night and came home and continued to stay up all night and watch Fringe with my mom.. Today, I seriously can't move. My whole body is either burning or feeling like it got hit with a hammer.. Sometimes I guess I just want to try and forget that I can't do things, so I did. And I ended up doing them all. It was the best weekend I've ever had but now I'm going to be stuck all day between the bed, toilet, and bathtub. I make the worst decisions ever.
The good news about my neuro appointment is that I don't have a tethered cord, so no surgery. Which is awesome. But the reason it's felt tethered is that my bones have continued to degenerate which has made the Schmorl's nodes that much worse. My syrinx is also the exact same and he has come to the conclusion that it will never go away. So, I have accepted this. I really have. The only thing I have to hold onto now is the hope that my stomach will start healing soon and I can actually begin treatment for the bone pain and neuropathy. At the moment, I am taking SO much pain medicine. Constant drugs, massage, acupuncture, TENS, and everything else possible; and I'm still in agony. (Even when I'm resting and doing mild exercise.. after a weekend of being this active I guess I'm responsible for all of the extra pain.) My foot pain has also been worse, because my arches are now falling along with the added neuropathy.
I just want to give up. Just say fuck it and give up on life.
I've waited all year long for the tournament I just got benched from because I've missed so much practice from all the pain.
I have a huge jazz piano concert coming up that I desperately need to practice for but my hands get so inflamed its not even worth it.
I'm losing my friends because 'I've changed' (I just stopped caring; if they were in my position I'm pretty sure they would too)
Okay. I'm sorry I always just post depressing stuff when I'm on. I just get so tired of it all.
I truly hope you all are having a better time than me right now and have been pacing yourselves.
i hope that you can get some relief and practice on the piano. glad you have so many interests and some good friends. some will always go away.
take care and enjoy the memories. hugs
You are not alone in your suffering hun. I was reading over your profile and see that you are very young. I am sorry that you are having to deal with all of this at such a very young age. It is only natural that you want to go out and have fun as a teenager. I am going through a horrendous time in my life and without disclosing all the sordid details I can say my heart goes out to you.
I also have syringomyelia and pseudotumor cerebri and an LP shunt along with a list of other problems both spine, brain and now heart and lung. Everyone here has a huge heart and can def identify with the pain part and wanting to give up at times.
We can cheer you on and give you a reason to keep going another day. At least that's what the others have given me. Don't give up; we care about you and what's going on in your life!! Your life is precious!! You do not make the worst decisions ever! You are choosing life and try to live it to it's fullest even if you ache the next day and that is admirable!!
Please take care of yourself; know I am praying for you, and this is your safe haven to come vent, rant, and be amongst friends:)
Beth
Take care.
Jeri